Mismatch repair cancer syndrome 1

disease
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Also known as brain tumor-polyposis syndromebrain tumor-polyposis syndrome 1BTP1 syndromeCNS tumors with familial polyposis of the colonCNS tumours with familial polyposis of the colonglioma-polyposis syndromemalignant tumors of the central nervous system associated with familial polyposis of the colonmalignant tumours of the central nervous system associated with familial polyposis of the colonmismatch repair cancer syndromeMLH1-related constitutional mismatch repair deficiency syndromeMMRCSMMRCS1Turcot Syndrome

Summary

Mismatch repair cancer syndrome 1 (MONDO:0010159) is a cancer caused by variants in MLH1, MSH2, MSH6, and 1 other genes, with 4 cohort genes (4 CIViC-evidence somatic drivers; 355 ClinVar predisposition records) and 1 clinical trial. The dominant Reactome pathway is Mismatch repair (MMR) directed by MSH2:MSH6 (MutSalpha) (4 cohort genes).

At a glance

  • Classification: Cancer
  • Causal genes: MLH1 (GenCC Definitive), MSH2 (GenCC Definitive), MSH6 (GenCC Definitive), PMS2 (GenCC Definitive)
  • Cohort genes: 4
  • ClinVar variants: 355
  • Clinical trials: 1

Clinical features

No curated clinical features (Orphanet) for this disease.

Identifiers

Disease identifiers

FieldValue
Canonical namemismatch repair cancer syndrome 1
Mondo IDMONDO:0010159
MeSHC536928
OMIM276300
SNOMED CT61665008
UMLSC5399763
MedGen1748029
GARD0000420
NORD1805
Is cancer (heuristic)yes

Also known as: brain tumor-polyposis syndrome · brain tumor-polyposis syndrome 1 · BTP1 syndrome · CNS tumors with familial polyposis of the colon · CNS tumours with familial polyposis of the colon · glioma-polyposis syndrome · malignant tumors of the central nervous system associated with familial polyposis of the colon · malignant tumours of the central nervous system associated with familial polyposis of the colon · mismatch repair cancer syndrome · mismatch repair cancer syndrome 1 · MLH1-related constitutional mismatch repair deficiency syndrome · MMRCS · MMRCS1 · Turcot Syndrome

Data availability: 355 ClinVar variants · 11 GenCC gene-disease records · 2 cell lines.

Disease family

Classification path: disease › human disease › disease by etiologic mechanism › disease of genetic or genomic mechanism › hereditary diseasehereditary neoplastic syndromemismatch repair cancer syndrome 1

Related subtypes (116): mosaic variegated aneuploidy syndrome, tuberous sclerosis, hereditary breast ovarian cancer syndrome, hereditary multiple osteochondromas, nevoid basal cell carcinoma syndrome, leukemia, chronic lymphocytic, susceptibility to, 2, blue rubber bleb nevus, cherubism, Beckwith-Wiedemann syndrome, multiple self-healing squamous epithelioma, erythroleukemia, familial, susceptibility to, goiter, multinodular 1, with or without Sertoli-Leydig cell tumors, hyperparathyroidism 2 with jaw tumors, Kaposi sarcoma, susceptibility to, hereditary leiomyomatosis and renal cell cancer, susceptibility to uveal melanoma, melanoma and neural system tumor syndrome, nasopharyngeal carcinoma, susceptibility to, 2, WAGR syndrome, neuroblastoma, susceptibility to, 1, Rothmund-Thomson syndrome, Wiskott-Aldrich syndrome, N syndrome, hereditary thrombocytopenia and hematologic cancer predisposition syndrome, prostate cancer/brain cancer susceptibility, Brooke-Spiegler syndrome, pancreatic cancer, susceptibility to, 1, Carney-Stratakis syndrome, nasopharyngeal carcinoma, susceptibility to, 1, ovarian cancer, susceptibility to, 1, colorectal cancer, susceptibility to, 1, lung cancer susceptibility 1, leukemia, chronic lymphocytic, susceptibility to, 1, Kostmann syndrome, colorectal cancer, susceptibility to, 2, colorectal cancer, susceptibility to, 3, colorectal cancer, susceptibility to, 5, colorectal cancer, susceptibility to, 6, colorectal cancer, susceptibility to, 7, leukemia, chronic lymphocytic, susceptibility to, 3, leukemia, chronic lymphocytic, susceptibility to, 4, leukemia, chronic lymphocytic, susceptibility to, 5, lung cancer susceptibility 3, colorectal cancer, susceptibility to, 8, colorectal cancer, susceptibility to, 9, colorectal cancer, susceptibility to, 10, colorectal cancer, susceptibility to, 11, lung cancer susceptibility 4, neuroblastoma, susceptibility to, 3, neuroblastoma, susceptibility to, 4, neuroblastoma, susceptibility to, 5, neuroblastoma, susceptibility to, 6, leukemia, acute lymphocytic, susceptibility to, 1, leukemia, acute lymphocytic, susceptibility to, 2, lung cancer susceptibility 5, BAP1-related tumor predisposition syndrome, familial cutaneous telangiectasia and oropharyngeal predisposition cancer syndrome, Maffucci syndrome, basal cell carcinoma, susceptibility to, 7, colorectal cancer, susceptibility to, 12, leukemia, acute lymphoblastic, susceptibility to, 3, cholangiocarcinoma, susceptibility to, progeroid features-hepatocellular carcinoma predisposition syndrome, neuroblastoma, susceptibility to, 7, DDX41-related hematologic malignancy predisposition syndrome, nasopharyngeal carcinoma, susceptibility to, 3, familial isolated hyperparathyroidism, intestinal polyposis syndrome, dyskeratosis congenita, familial rhabdoid tumor, multiple endocrine neoplasia, hereditary pheochromocytoma-paraganglioma, PTEN hamartoma tumor syndrome, familial multiple fibrofolliculoma, hereditary retinoblastoma, familial atypical multiple mole melanoma syndrome, hereditary nonpolyposis colon cancer, Li-Fraumeni syndrome, Cobb syndrome, neurofibromatosis, susceptibility to familial cutaneous melanoma, pancreatic cancer, susceptibility to, 5, leukemia, acute myeloid, susceptibility to, diffuse gastric and lobular breast cancer syndrome with or without cleft lip and/or palate, glioma susceptibility, hemangioma, capillary infantile, susceptibility to, CDH1-related diffuse gastric and lobular breast cancer syndrome, NTHL1-deficiency tumor predisposition syndrome, SAMD9-related spectrum and myeloid neoplasm risk, neuroblastoma, susceptibility to, 2, BARD1-related cancer predisposition, BRCA1-related cancer predisposition, BRCA2-related cancer predisposition, ATM-related cancer predisposition, CHEK2-related cancer predisposition, PALB2-related cancer predisposition, RAD51C-related cancer predisposition, RAD51D-related cancer predisposition, Li-fraumeni-like syndrome, breast cancer, familial, susceptibility to, 1, breast cancer, familial, susceptibility to, 2, breast cancer, familial, susceptibility to, 3, colorectal cancer, susceptibility to, 4, colorectal cancer, susceptibility to, on chromosome 15, ovarian cancer, familial, susceptibility to, 1, ovarian cancer, familial, susceptibility to, 2, ovarian cancer, familial, susceptibility to, 3, inherited hematologic cancer-predisposing syndrome, mosaic neurofibromatosis/schwannomatosis, tumor predisposition syndrome 2, prostate cancer, hereditary, X-linked 3, follicular lymphoma, susceptibility to, GPR161-related medulloblastoma predisposition, SAMD9L-related spectrum and myeloid neoplasm risk, HAVCR2-related cancer predisposition, EGLN1-related erythrocytosis and pheochromocytoma/paraganglioma predisposition

Genetics & variants

GWAS landscape

No GWAS associations recorded — common-variant (GWAS) studies don’t cover this disease (typical for Mendelian / rare diseases). See the curated gene cohort and Mendelian overlap below.

Variant details and genetic-evidence tiers

ClinVar germline variants

355 retrieved; paginated sample, class counts are floors:

154 conflicting classifications of pathogenicity, 63 pathogenic, 62 uncertain significance, 17 pathogenic/likely pathogenic, 16 benign/likely benign, 15 likely pathogenic, 14 benign, 14 likely benign

ClinVarVariant (HGVS)GeneClassificationReview
3891681NC_000003.12:g.48091287_48091298delPathogeniccriteria provided, single submitter
1404368NM_000249.4(MLH1):c.816del (p.Arg273fs)MLH1Pathogenic/Likely pathogeniccriteria provided, multiple submitters, no conflicts
17080NM_000249.4(MLH1):c.1846AAG[2] (p.Lys618del)MLH1Pathogenicreviewed by expert panel
17087NM_000249.4(MLH1):c.676C>T (p.Arg226Ter)MLH1Pathogenicreviewed by expert panel
17088NM_000249.4(MLH1):c.199G>T (p.Gly67Trp)MLH1Pathogenicreviewed by expert panel
17091MLH1, EX16DELMLH1Pathogenicno assertion criteria provided
17094NM_000249.4(MLH1):c.350C>T (p.Thr117Met)MLH1Pathogenicreviewed by expert panel
17097NM_000249.4(MLH1):c.1942C>T (p.Pro648Ser)MLH1Pathogenicreviewed by expert panel
17099NM_000249.4(MLH1):c.2041G>A (p.Ala681Thr)MLH1Pathogenicreviewed by expert panel
17105NM_000249.4(MLH1):c.104_105delinsAC (p.Met35Asn)MLH1Pathogenicreviewed by expert panel
1748267NM_000249.4(MLH1):c.1204_1207dup (p.Pro403fs)MLH1Pathogenic/Likely pathogeniccriteria provided, multiple submitters, no conflicts
1764964NM_000249.4(MLH1):c.887T>A (p.Leu296Ter)MLH1Pathogeniccriteria provided, multiple submitters, no conflicts
1781909NM_000249.4(MLH1):c.1882_1883del (p.Leu628fs)MLH1Pathogeniccriteria provided, multiple submitters, no conflicts
1786014NM_000249.4(MLH1):c.2109_2112dup (p.Pro705fs)MLH1Pathogeniccriteria provided, multiple submitters, no conflicts
29654NM_000249.4(MLH1):c.793C>T (p.Arg265Cys)MLH1Pathogenicreviewed by expert panel
36540NM_000249.4(MLH1):c.1381A>T (p.Lys461Ter)MLH1Pathogenicreviewed by expert panel
3779867NM_000249.4(MLH1):c.2038_2063del (p.Cys680fs)MLH1Pathogeniccriteria provided, single submitter
3891677NM_000249.4(MLH1):c.135_137delinsTACT (p.Ser46fs)MLH1Pathogeniccriteria provided, single submitter
405406NM_000249.4(MLH1):c.1105dup (p.Ser369fs)MLH1Pathogeniccriteria provided, multiple submitters, no conflicts
42192NM_000249.4(MLH1):c.218T>G (p.Leu73Arg)MLH1Pathogenic/Likely pathogeniccriteria provided, multiple submitters, no conflicts
449776NM_000249.4(MLH1):c.1667G>A (p.Ser556Asn)MLH1Pathogenic/Likely pathogeniccriteria provided, multiple submitters, no conflicts
580133NM_000249.4(MLH1):c.885-1G>AMLH1Pathogenic/Likely pathogeniccriteria provided, multiple submitters, no conflicts
642710NM_000249.4(MLH1):c.2070C>G (p.Tyr690Ter)MLH1Pathogenic/Likely pathogeniccriteria provided, multiple submitters, no conflicts
89744NM_000249.4(MLH1):c.1459C>T (p.Arg487Ter)MLH1Pathogenicreviewed by expert panel
89749NM_000249.4(MLH1):c.146T>A (p.Val49Glu)MLH1Pathogenicreviewed by expert panel
89857NM_000249.4(MLH1):c.1731G>A (p.Ser577=)MLH1Pathogenicreviewed by expert panel
89888NM_000249.4(MLH1):c.1783_1784del (p.Ser595fs)MLH1Pathogenicreviewed by expert panel
89935NM_000249.4(MLH1):c.18_34del (p.Val7fs)MLH1Pathogenicreviewed by expert panel
89994NM_000249.4(MLH1):c.1A>G (p.Met1Val)MLH1Pathogenicreviewed by expert panel
90011NM_000249.4(MLH1):c.2042C>T (p.Ala681Val)MLH1Pathogenic/Likely pathogeniccriteria provided, multiple submitters, no conflicts

Genes & proteins

Mendelian disease overlap and somatic drivers

GenCC: 68 · Orphanet: 8 · OMIM-shared: 0 · Dual-evidence (GWAS+Mendelian): 0

Somatic driver evidence (intOGen + CIViC, cohort fanout)

GeneintOGen roleCancer typesCIViC
MLH1CIViC #3532
MSH2CIViC #3628
MSH6CIViC #2478
PMS2ambiguousHCCCIViC #4371

GenCC gene–disease validity (cohort genes)

the Disease column is the GenCC-asserted condition — a cohort gene’s strongest validity may be for a related predisposition syndrome.

GeneClassificationInheritanceDiseaseRecords
MLH1DefinitiveAutosomal recessivemismatch repair cancer syndrome 119
MSH2DefinitiveAutosomal recessivemismatch repair cancer syndrome 117
MSH6DefinitiveAutosomal recessivemismatch repair cancer syndrome 117
PMS2DefinitiveAutosomal recessivemismatch repair cancer syndrome 115

Orphanet rare-disease linkage (cohort genes)

GeneOrphanet IDRare disease
MLH1Orphanet:144Lynch syndrome
MLH1Orphanet:252202Constitutional mismatch repair deficiency syndrome
MSH2Orphanet:144Lynch syndrome
MSH2Orphanet:252202Constitutional mismatch repair deficiency syndrome
MSH6Orphanet:144Lynch syndrome
MSH6Orphanet:252202Constitutional mismatch repair deficiency syndrome
PMS2Orphanet:144Lynch syndrome
PMS2Orphanet:252202Constitutional mismatch repair deficiency syndrome

Cohort genes → proteins

4 cohort genes, 4 distinct canonical proteins.

Evidence partition

SubsetGenes
multi_evidence4

Cohort genes (full)

SymbolHGNCEnsemblUniProtNameEvidence
MLH1HGNC:7127ENSG00000076242P40692DNA mismatch repair protein Mlh1gencc,clinvar
MSH2HGNC:7325ENSG00000095002P43246DNA mismatch repair protein Msh2gencc,clinvar
MSH6HGNC:7329ENSG00000116062P52701DNA mismatch repair protein Msh6gencc,clinvar
PMS2HGNC:9122ENSG00000122512P54278Mismatch repair endonuclease PMS2gencc,clinvar

Cohort function summary

Lead sentence per gene, UniProt-curated.

SymbolProtein nameFunction (lead sentence)
MLH1DNA mismatch repair protein Mlh1Heterodimerizes with PMS2 to form MutL alpha, a component of the post-replicative DNA mismatch repair system (MMR).
MSH2DNA mismatch repair protein Msh2Component of the post-replicative DNA mismatch repair system (MMR).
MSH6DNA mismatch repair protein Msh6Component of the post-replicative DNA mismatch repair system (MMR).
PMS2Mismatch repair endonuclease PMS2Component of the post-replicative DNA mismatch repair system (MMR).

Protein-family classification

Druggable: 0 · Difficult: 0 · Unknown: 4 · Druggable fraction: 0.0

Family distribution

Cohort families vs a genome-wide background (hypergeometric, BH-FDR; fold = observed/expected). Counts kept; sorted by enrichment, so the catch-all Other/Unknown bucket no longer leads.

FamilyGenesFoldFDR
Other/Unknown41.8×0.097

Per-gene assignment

SymbolFamilyDruggable?ECInterPro (top 3)
MLH1Other/UnknownnoMutL/Mlh/PMS, DNA_mismatch_S5_2-like, Ribsml_uS5_D2-typ_fold_subgr
MSH2Other/UnknownnoDNA_mismatch_repair_MutS_C, DNA_mismatch_repair_MutS-lik_N, DNA_mismatch_repair_MutS_core
MSH6Other/UnknownnoPWWP_dom, DNA_mismatch_repair_MutS_C, DNA_mismatch_repair_MutS-lik_N
PMS2Other/UnknownnoMutL/Mlh/PMS, DNA_mismatch_S5_2-like, Ribsml_uS5_D2-typ_fold_subgr

Expression context

Cohort genes with no expression data: 0.

4 cohort genes are a single-cell marker in ≥1 SCXA experiment.

Breadth distribution (Bgee present_calls)

BucketGenes
narrow (1-5 tissues)0
moderate (6-20)0
broad (>20)4
unknown0

Top tissues across cohort

TissueCohort genes
ventricular zone2
deltoid1
skeletal muscle tissue of rectus abdominis1
tibialis anterior1
oocyte1
secondary oocyte1
embryo1
ganglionic eminence1
male germ line stem cell (sensu Vertebrata) in testis1
prefrontal cortex1
thymus1

Per-gene tissue summary (top 30)

SymbolBgee breadthFANTOM5 breadthSCXATop tissues
MLH1296ubiquitousmarkertibialis anterior, skeletal muscle tissue of rectus abdominis, deltoid
MSH2278ubiquitousmarkersecondary oocyte, oocyte, ventricular zone
MSH6293ubiquitousmarkerventricular zone, embryo, ganglionic eminence
PMS2143ubiquitousmarkerthymus, prefrontal cortex, male germ line stem cell (sensu Vertebrata) in testis

Protein interactions among cohort

Intra-cohort edges: 6.

Hub genes (top 10 by interactor count)

SymbolInteractor count
MSH24,537
MLH14,435
MSH64,091
PMS22,658

Intra-cohort edges

ABSources
MLH1MSH2string_interaction
MLH1MSH6string_interaction
MLH1PMS2biogrid_interaction, intact, string_interaction
MSH2MSH6biogrid_interaction, intact, string_interaction
MSH2PMS2string_interaction
MSH6PMS2string_interaction

Structural data

PDB: 4 · AlphaFold-only: 0 · No structure: 0

Cohort genes with PDB structures (top 30)

SymbolUniProtPDB entries
MSH2P4324630
PMS2P542789
MSH6P527018
MLH1P406927

Function

Pathway analysis

Distinct Reactome pathways touched by cohort: 21. Enrichment computed across 4 evidence-associated genes (4 with Reactome annotation).

Pathways by enrichment

Over-representation of cohort genes vs the genome-wide background (hypergeometric test, Benjamini-Hochberg FDR; fold = observed/expected over 4 annotated cohort genes). Counts and members are kept as ground-truth; sorted by enrichment.

PathwayCohort genesFoldFDRSample cohort genes
Mismatch repair (MMR) directed by MSH2:MSH6 (MutSalpha)4815.7×3e-11MLH1, MSH2, MSH6, PMS2
Mismatch Repair32141.2×5e-10MLH1, MSH2, MSH6
Diseases of Mismatch Repair (MMR)32141.2×5e-10MLH1, MSH2, MSH6
Mismatch repair (MMR) directed by MSH2:MSH3 (MutSbeta)3611.8×3e-08MLH1, MSH2, PMS2
Diseases of DNA repair3428.2×8e-08MLH1, MSH2, MSH6
Defective Mismatch Repair Associated With MLH122855.0×2e-07MLH1, PMS2
Defective Mismatch Repair Associated With MSH622855.0×2e-07MSH2, MSH6
Defective Mismatch Repair Associated With PMS222855.0×2e-07MLH1, PMS2
Defective Mismatch Repair Associated With MSH221903.3×6e-07MSH2, MSH6
TP53 Regulates Transcription of DNA Repair Genes3135.9×1e-06MLH1, MSH2, PMS2
DNA Repair373.8×8e-06MLH1, MSH2, MSH6
Defective Mismatch Repair Associated With MSH311427.5×0.001MSH2
Transcriptional Regulation by TP53231.0×0.002MLH1, MSH2
Disease39.8×0.003MLH1, MSH2, MSH6
RNA Polymerase II Transcription211.3×0.016MLH1, MSH2
Meiosis171.4×0.018MLH1
Gene expression (Transcription)28.9×0.022MLH1, MSH2
Reproduction147.6×0.024MLH1
Generic Transcription Pathway27.5×0.027MLH1, MSH2
Meiotic recombination132.4×0.032MLH1
Cell Cycle19.0×0.107MLH1

GO biological processes by enrichment

Over-representation of cohort genes vs the genome-wide background (hypergeometric test, Benjamini-Hochberg FDR; fold = observed/expected over 4 annotated cohort genes). Counts and members are kept as ground-truth; sorted by enrichment.

GO termCohort genesFoldFDRSample cohort genes
somatic hypermutation of immunoglobulin genes41053.2×2e-11MLH1, MSH2, MSH6, PMS2
mismatch repair4648.1×1e-10MLH1, MSH2, MSH6, PMS2
somatic recombination of immunoglobulin gene segments33159.8×3e-10MSH2, MSH6, PMS2
positive regulation of isotype switching to IgA isotypes32106.5×1e-09MLH1, MSH2, PMS2
positive regulation of isotype switching to IgG isotypes31149.0×7e-09MLH1, MSH2, PMS2
isotype switching3632.0×4e-08MLH1, MSH2, MSH6
negative regulation of DNA recombination2561.7×3e-05MSH2, MSH6
determination of adult lifespan2216.1×2e-04MSH2, MSH6
intrinsic apoptotic signaling pathway in response to DNA damage2162.0×3e-04MLH1, MSH6
meiotic mismatch repair14213.0×9e-04MSH6
somatic recombination of immunoglobulin genes involved in immune response14213.0×9e-04MSH2
meiotic metaphase I homologous chromosome alignment14213.0×9e-04MLH1
meiotic spindle midzone assembly12106.5×0.002MLH1
male meiosis chromosome segregation11404.3×0.002MLH1
negative regulation of mitotic recombination11404.3×0.002MLH1
female meiosis chromosome segregation11053.2×0.002MLH1
B cell mediated immunity11053.2×0.002MSH2
maintenance of DNA repeat elements1842.6×0.003MSH2
mitotic recombination1702.2×0.003MSH2
DNA repair231.9×0.003MSH2, MSH6
response to UV-B1468.1×0.004MSH2
meiotic telomere clustering1468.1×0.004MLH1
DNA damage tolerance1421.3×0.004MSH2
oxidative phosphorylation1351.1×0.005MSH2
resolution of meiotic recombination intermediates1234.1×0.007MLH1
mitotic intra-S DNA damage checkpoint signaling1234.1×0.007MSH2
response to X-ray1221.7×0.007MSH2
spermatogenesis217.6×0.007MLH1, MSH6
nuclear-transcribed mRNA poly(A) tail shortening1200.6×0.007MLH1
homologous chromosome pairing at meiosis1150.5×0.010MLH1

Therapeutics

Drug target analysis

Approved (phase 4): 0 · Phase ≥3: 0 · Phased (≥1): 1 · Undrugged: 3

Druggability breadth: 3 of 4 evidence-associated genes (75%) have a ChEMBL target (buckets above are over the deeply-mined display cohort).

Top cohort targets by molecule count

SymbolMoleculesMax phase
MSH612
MLH100
MSH200
PMS200

Drugs targeting cohort genes (top 30)

MoleculeMax phaseTargets in cohort
MOLIBRESIB2MSH6

Bioactivity and enzyme data

Enzyme cohort genes (≥1 EC): 0.

Cohort genes with ChEMBL bioactivity (full, sorted by assay count)

SymbolAssaysType breakdown
MSH610Binding:10
MSH29Binding:9
PMS21Binding:1

Pharmacogenomics

Cohort genes with a PharmGKB record: 4; with CPIC/DPWG dosing guidelines: 0.

No cohort gene has a CPIC/DPWG genotype-guided dosing guideline (PharmGKB).

Drug repurposing candidates

1 approved/phased drugs hit cohort targets but don’t yet appear in disease-level clinical trials. Target-inhibition rationale is strongest for cancer driver genes; a bioactivity hit is a screening signal, not a treatment claim.

CompoundMax phaseCohort target (bioactivity)
MOLIBRESIB2MSH6

Druggability pyramid

Cohort genes binned by druggability tier (high → low):

TierDefinitionGenesSymbols
AApproved (phase 4 drug)0
BPhased (≥1) drug, not yet approved1MSH6
CDruggable family + PDB, no drug0
DDruggable family + AlphaFold only, no drug0
EDifficult family or no structure, no drug3MLH1, MSH2, PMS2

Undrugged target profiles

3 cohort genes are undrugged. Ranked by ‘starting-point quality’ (assay depth + drugged-partner adjacency).

SymbolChEMBL assaysDrugged partners (top 3)
MLH10MSH6
PMS21MSH6
MSH29

Clinical trials & evidence

Clinical trials

Clinical trials: 1.

Phase distribution (across all retrieved trials)

PhaseTrials
Not specified1

Top trials by phase / activity

NCTPhaseStatusTitle
NCT07461246Not specifiedACTIVE_NOT_RECRUITINGFamilial Adenomatous Poliposys Italian Network (Rete Italiana Poliposi Adenomatosa Familiare)