Motor neuron disorder

disease
On this page

Also known as anterior horn cell diseasedisease of motor neurondisease or disorder of motor neurondisorder of motor neuronmotor neuron diseasemotor neuron disease or disorder

Summary

Motor neuron disorder (MONDO:0020128) is a disease with 9 cohort genes and 104 clinical trials. Top therapeutic interventions include acamprosate, trimetazidine, and pegcetacoplan.

At a glance

  • Cohort genes: 9
  • ClinVar variants: 41
  • Clinical trials: 104

Clinical features

No curated clinical features (Orphanet) for this disease.

Identifiers

Disease identifiers

FieldValue
Canonical namemotor neuron disorder
Mondo IDMONDO:0020128
EFOEFO:0003782
MeSHD016472
Orphanet98503
DOIDDOID:231
ICD-10-CMG12.2
ICD-11661720689
SNOMED CT37340000
UMLSC0085084
MedGen38785
GARD0019477
MedDRA10028003
Is cancer (heuristic)no

Also known as: anterior horn cell disease · disease of motor neuron · disease or disorder of motor neuron · disorder of motor neuron · motor neuron disease · motor neuron disease or disorder

Data availability: 41 ClinVar variants · 1 GenCC gene-disease record.

Disease family

An umbrella term covering 4 Mondo subtypes.

Classification path: disease › human disease › disease by body system or component › nervous system disordercentral nervous system disorderneurodegenerative diseasemotor neuron disorder

Related subtypes (21): synucleinopathy, eyelid degenerative disorder, senile degeneration of brain, olivopontocerebellar atrophy, neuroaxonal dystrophy, demyelinating disease, choroidal sclerosis, tauopathy, secondary Parkinson disease, infantile bilateral striatal necrosis, Marchiafava-Bignami disease, superficial siderosis, primary progressive apraxia of speech, human prion disease, primary progressive freezing gait, primary progressive aphasia, brachial amyotrophic diplegia, cerebellar degeneration, inherited neurodegenerative disorder, cerebral degeneration, hypertrophic olivary degeneration

Subtypes (4): amyotrophic lateral sclerosis, Madras motor neuron disease, acquired motor neuron disease, hereditary motor neuron disease

Genetics & variants

GWAS landscape

No GWAS associations recorded — common-variant (GWAS) studies don’t cover this disease (typical for Mendelian / rare diseases). See the curated gene cohort and Mendelian overlap below.

Variant details and genetic-evidence tiers

ClinVar germline variants

41 retrieved; paginated sample, class counts are floors:

17 conflicting classifications of pathogenicity, 8 uncertain significance, 4 pathogenic, 3 likely pathogenic, 3 other, 3 pathogenic; other, 2 pathogenic/likely pathogenic, 1 likely benign

ClinVarVariant (HGVS)GeneClassificationReview
266055NM_001199397.3(NEK1):c.214+1G>ANEK1Pathogenic; othercriteria provided, multiple submitters, no conflicts
266058NM_001199397.3(NEK1):c.481C>T (p.Arg161Ter)NEK1Pathogenic; othercriteria provided, multiple submitters, no conflicts
14752NM_000454.5(SOD1):c.112G>A (p.Gly38Arg)SOD1Pathogeniccriteria provided, multiple submitters, no conflicts
14761NM_000454.5(SOD1):c.302A>G (p.Glu101Gly)SOD1Pathogeniccriteria provided, multiple submitters, no conflicts
14784NM_000454.5(SOD1):c.280G>C (p.Gly94Arg)SOD1Pathogeniccriteria provided, multiple submitters, no conflicts
197145NM_000454.5(SOD1):c.341T>C (p.Ile114Thr)SOD1Pathogenic/Likely pathogeniccriteria provided, multiple submitters, no conflicts
21483NM_007375.4(TARDBP):c.859G>A (p.Gly287Ser)TARDBPPathogenic/Likely pathogeniccriteria provided, multiple submitters, no conflicts
266064NM_007375.4(TARDBP):c.1043G>T (p.Gly348Val)TARDBPPathogeniccriteria provided, single submitter
266072NM_013254.4(TBK1):c.1330C>T (p.Arg444Ter)TBK1Pathogenic; othercriteria provided, multiple submitters, no conflicts
1328480NM_000530.8(MPZ):c.130T>C (p.Ser44Pro)MPZLikely pathogeniccriteria provided, single submitter
266043NM_001199397.3(NEK1):c.386T>G (p.Ile129Ser)NEK1Likely pathogeniccriteria provided, single submitter
266063NM_000454.5(SOD1):c.437C>A (p.Ala146Asp)SOD1Likely pathogeniccriteria provided, single submitter
266059NM_001008212.2(OPTN):c.280A>C (p.Lys94Gln)LOC108903148Conflicting classifications of pathogenicitycriteria provided, conflicting classifications
199125NM_001199397.3(NEK1):c.782G>A (p.Arg261His)NEK1Conflicting classifications of pathogenicitycriteria provided, conflicting classifications
266044NM_001199397.3(NEK1):c.695G>A (p.Arg232His)NEK1Conflicting classifications of pathogenicitycriteria provided, conflicting classifications
266046NM_001199397.3(NEK1):c.1021G>A (p.Ala341Thr)NEK1Conflicting classifications of pathogenicitycriteria provided, conflicting classifications
266047NM_001199397.3(NEK1):c.1137T>A (p.Asp379Glu)NEK1Conflicting classifications of pathogenicitycriteria provided, conflicting classifications
266048NM_001199397.3(NEK1):c.1789T>A (p.Phe597Ile)NEK1Conflicting classifications of pathogenicitycriteria provided, conflicting classifications
266049NM_001199397.3(NEK1):c.2137G>A (p.Val713Met)NEK1Conflicting classifications of pathogenicitycriteria provided, conflicting classifications
266050NM_001199397.3(NEK1):c.2306A>G (p.His769Arg)NEK1Conflicting classifications of pathogenicitycriteria provided, conflicting classifications
266051NM_001199397.3(NEK1):c.2235T>G (p.Asn745Lys)NEK1Conflicting classifications of pathogenicitycriteria provided, conflicting classifications
266053NM_001199397.3(NEK1):c.2392C>G (p.Leu798Val)NEK1Conflicting classifications of pathogenicitycriteria provided, conflicting classifications
266054NM_001199397.3(NEK1):c.3140C>T (p.Ser1047Leu)NEK1Conflicting classifications of pathogenicitycriteria provided, conflicting classifications
266056NM_001199397.3(NEK1):c.1750-5T>CNEK1Conflicting classifications of pathogenicitycriteria provided, conflicting classifications
266060NM_001008212.2(OPTN):c.941A>T (p.Gln314Leu)OPTNConflicting classifications of pathogenicitycriteria provided, conflicting classifications
266062NM_001008212.2(OPTN):c.1403T>G (p.Met468Arg)OPTNConflicting classifications of pathogenicitycriteria provided, conflicting classifications
266065NM_007375.4(TARDBP):c.1122T>G (p.Tyr374Ter)TARDBPConflicting classifications of pathogenicitycriteria provided, conflicting classifications
266068NM_013254.4(TBK1):c.452C>T (p.Ser151Phe)TBK1Conflicting classifications of pathogenicitycriteria provided, conflicting classifications
266069NM_013254.4(TBK1):c.829C>G (p.Leu277Val)TBK1Conflicting classifications of pathogenicitycriteria provided, conflicting classifications
549699NM_002047.4(GARS1):c.123_124insG (p.Pro42fs)GARS1Uncertain significanceno assertion criteria provided

Genes & proteins

Mendelian disease overlap and somatic drivers

GenCC: 4 · Orphanet: 23 · OMIM-shared: 0 · Dual-evidence (GWAS+Mendelian): 0

GenCC gene–disease validity (cohort genes)

the Disease column is the GenCC-asserted condition — a cohort gene’s strongest validity may be for a related predisposition syndrome.

GeneClassificationInheritanceDiseaseRecords
DSCAML1LimitedAutosomal recessivemotor neuron disorder4

Orphanet rare-disease linkage (cohort genes)

GeneOrphanet IDRare disease
SOD1Orphanet:803Amyotrophic lateral sclerosis
TARDBPOrphanet:275872Frontotemporal dementia with motor neuron disease
TARDBPOrphanet:700154TARDBP-related predominantly upper-limb distal myopathy
TARDBPOrphanet:803Amyotrophic lateral sclerosis
TBK1Orphanet:1930Herpes simplex virus encephalitis
TBK1Orphanet:275872Frontotemporal dementia with motor neuron disease
TBK1Orphanet:803Amyotrophic lateral sclerosis
PARK7Orphanet:2828Young-onset Parkinson disease
PARK7Orphanet:90020Parkinson-dementia complex of Guam
OPTNOrphanet:803Amyotrophic lateral sclerosis
GARS1Orphanet:139536Distal hereditary motor neuropathy type 5
GARS1Orphanet:99938Autosomal dominant Charcot-Marie-Tooth disease type 2D
MPZOrphanet:100046Autosomal dominant intermediate Charcot-Marie-Tooth disease type D
MPZOrphanet:101082Charcot-Marie-Tooth disease type 1B
MPZOrphanet:3115Roussy-Lévy syndrome
MPZOrphanet:324585Autosomal dominant intermediate Charcot-Marie-Tooth disease with neuropathic pain
MPZOrphanet:538574Palmoplantar keratoderma-hereditary motor and sensory neuropathy syndrome
MPZOrphanet:64748Dejerine-Sottas syndrome
MPZOrphanet:99942Autosomal dominant Charcot-Marie-Tooth disease type 2I
MPZOrphanet:99943Autosomal dominant Charcot-Marie-Tooth disease type 2J
NEK1Orphanet:2751Orofaciodigital syndrome type 2
NEK1Orphanet:803Amyotrophic lateral sclerosis
NEK1Orphanet:93269Short rib-polydactyly syndrome, Majewski type

Cohort genes → proteins

9 cohort genes, 9 distinct canonical proteins.

Evidence partition

SubsetGenes
multi_evidence9

Cohort genes (full)

SymbolHGNCEnsemblUniProtNameEvidence
DSCAML1HGNC:14656ENSG00000177103Q8TD84Cell adhesion molecule DSCAML1gencc
SOD1HGNC:11179ENSG00000142168P00441Superoxide dismutase [Cu-Zn]clinvar
TARDBPHGNC:11571ENSG00000120948Q13148TAR DNA-binding protein 43clinvar
TBK1HGNC:11584ENSG00000183735Q9UHD2Serine/threonine-protein kinase TBK1clinvar
PARK7HGNC:16369ENSG00000116288Q99497Parkinson disease protein 7clinvar
OPTNHGNC:17142ENSG00000123240Q96CV9Optineurinclinvar
GARS1HGNC:4162ENSG00000106105P41250Glycine–tRNA ligaseclinvar
MPZHGNC:7225ENSG00000158887P25189Myelin protein P0clinvar
NEK1HGNC:7744ENSG00000137601Q96PY6Serine/threonine-protein kinase Nek1clinvar

Cohort function summary

Lead sentence per gene, UniProt-curated.

SymbolProtein nameFunction (lead sentence)
DSCAML1Cell adhesion molecule DSCAML1Cell adhesion molecule that plays a role in neuronal self-avoidance.
SOD1Superoxide dismutase [Cu-Zn]Destroys radicals which are normally produced within the cells and which are toxic to biological systems.
TARDBPTAR DNA-binding protein 43RNA-binding protein that is involved in various steps of RNA biogenesis and processing.
TBK1Serine/threonine-protein kinase TBK1Serine/threonine kinase that plays an essential role in regulating inflammatory responses to foreign agents.
PARK7Parkinson disease protein 7Multifunctional protein with controversial molecular function which plays an important role in cell protection against oxidative stress and cell death acting as oxidative stress sensor and redox-sensitive chaperone and protease.
OPTNOptineurinPlays an important role in the maintenance of the Golgi complex, in membrane trafficking, in exocytosis, through its interaction with myosin VI and Rab8.
GARS1Glycine–tRNA ligaseCatalyzes the ATP-dependent ligation of glycine to the 3’-end of its cognate tRNA, via the formation of an aminoacyl-adenylate intermediate (Gly-AMP).
MPZMyelin protein P0Is an adhesion molecule necessary for normal myelination in the peripheral nervous system.
NEK1Serine/threonine-protein kinase Nek1Phosphorylates serines and threonines, but also appears to possess tyrosine kinase activity.

Protein-family classification

Druggable: 7 · Difficult: 0 · Unknown: 2 · Druggable fraction: 0.78

Family distribution

Cohort families vs a genome-wide background (hypergeometric, BH-FDR; fold = observed/expected). Counts kept; sorted by enrichment, so the catch-all Other/Unknown bucket no longer leads.

FamilyGenesFoldFDR
Antibody/Immunoglobulin26.5×0.053
Kinase26.2×0.053
Enzyme (other)34.0×0.053
Other/Unknown20.4×0.992

Per-gene assignment

SymbolFamilyDruggable?ECInterPro (top 3)
DSCAML1Antibody/ImmunoglobulinyesIg_sub2, Ig_sub, FN3_dom
SOD1Enzyme (other)yes1.15.1.1SOD_Cu_Zn_dom, SOD_Cu/Zn_BS, SOD_Cu/Zn_/chaperone
TARDBPOther/UnknownnoRRM_dom, Nucleotide-bd_a/b_plait_sf, RBD_domain_sf
TBK1KinaseyesProt_kinase_dom, Kinase-like_dom_sf, Protein_kinase_ATP_BS
PARK7Enzyme (other)yes3.5.1.124DJ-1/PfpI, DJ-1, Class_I_gatase-like
OPTNOther/UnknownnoNEMO_N, CC2-LZ_dom, NEMO_ZF
GARS1Enzyme (other)yes6.1.1.14WHEP-TRS_dom, aa-tRNA-synt_IIb, tRNA-synt_gly
MPZAntibody/ImmunoglobulinyesMyelin_P0-rel, Ig_sub, Ig-like_dom
NEK1KinaseyesProt_kinase_dom, Ser/Thr_kinase_AS, Kinase-like_dom_sf

Expression context

Cohort genes with no expression data: 0.

9 cohort genes are a single-cell marker in ≥1 SCXA experiment.

Breadth distribution (Bgee present_calls)

BucketGenes
narrow (1-5 tissues)0
moderate (6-20)0
broad (>20)9
unknown0

Top tissues across cohort

TissueCohort genes
secondary oocyte3
lateral nuclear group of thalamus2
C1 segment of cervical spinal cord1
cortical plate1
germinal epithelium of ovary1
dorsal root ganglion1
pons1
substantia nigra pars compacta1
ganglionic eminence1
ventricular zone1
calcaneal tendon1
colonic epithelium1
adult organism1
deltoid1
tibia1
amniotic fluid1
gastrocnemius1
muscle of leg1
cartilage tissue1
olfactory bulb1

Per-gene tissue summary (top 30)

SymbolBgee breadthFANTOM5 breadthSCXATop tissues
DSCAML1187broadmarkercortical plate, germinal epithelium of ovary, C1 segment of cervical spinal cord
SOD1304ubiquitousmarkerpons, dorsal root ganglion, substantia nigra pars compacta
TARDBP301ubiquitousmarkersecondary oocyte, ventricular zone, ganglionic eminence
TBK1284ubiquitousmarkercolonic epithelium, calcaneal tendon, lateral nuclear group of thalamus
PARK7294ubiquitousmarkeradult organism, tibia, deltoid
OPTN302ubiquitousmarkeramniotic fluid, gastrocnemius, muscle of leg
GARS1293ubiquitousmarkersecondary oocyte, cartilage tissue, lateral nuclear group of thalamus
MPZ178ubiquitousmarkertibial nerve, sural nerve, olfactory bulb
NEK1288ubiquitousmarkersecondary oocyte, trigeminal ganglion, oocyte

Protein interactions among cohort

Intra-cohort edges: 5.

Hub genes (top 10 by interactor count)

SymbolInteractor count
TARDBP7,245
SOD16,807
PARK75,722
TBK15,476
OPTN3,505
GARS12,426
DSCAML11,929
NEK11,512
MPZ25

Intra-cohort edges

ABSources
NEK1TARDBPstring_interaction
OPTNSOD1biogrid_interaction, string_interaction
OPTNTARDBPstring_interaction
OPTNTBK1intact, string_interaction
SOD1TARDBPstring_interaction

Structural data

PDB: 9 · AlphaFold-only: 0 · No structure: 0

Cohort genes with PDB structures (top 30)

SymbolUniProtPDB entries
SOD1P00441156
PARK7Q9949788
TARDBPQ1314844
TBK1Q9UHD225
OPTNQ96CV914
GARS1P4125014
MPZP251892
NEK1Q96PY62
DSCAML1Q8TD841

Function

Pathway analysis

Distinct Reactome pathways touched by cohort: 75. Enrichment computed across 9 evidence-associated genes (8 with Reactome annotation).

Pathways by enrichment

Over-representation of cohort genes vs the genome-wide background (hypergeometric test, Benjamini-Hochberg FDR; fold = observed/expected over 8 annotated cohort genes). Counts and members are kept as ground-truth; sorted by enrichment.

PathwayCohort genesFoldFDRSample cohort genes
Regulation of TBK1, IKKε-mediated activation of IRF3, IRF7 upon TLR3 ligation2237.9×0.001TBK1, OPTN
TICAM1-dependent activation of IRF3/IRF72203.9×0.001TBK1, OPTN
Regulation of TBK1, IKKε (IKBKE)-mediated activation of IRF3, IRF72190.3×0.001TBK1, OPTN
Activation of IRF3, IRF7 mediated by TBK1, IKKε (IKBKE)2150.3×0.001TBK1, OPTN
TNFR1-induced proapoptotic signaling2109.8×0.002TBK1, OPTN
PINK1-PRKN Mediated Mitophagy289.2×0.003TBK1, OPTN
Regulation of TNFR1 signaling256.0×0.006TBK1, OPTN
STAT6-mediated induction of chemokines1475.8×0.020TBK1
DSCAM interactions1285.5×0.029DSCAML1
IRF3 mediated activation of type 1 IFN1237.9×0.031TBK1
ZBP1(DAI) mediated induction of type I IFNs1129.8×0.041TBK1
STING mediated induction of host immune responses1129.8×0.041TBK1
Mitophagy1129.8×0.041TBK1
Signaling by Interleukins216.0×0.041SOD1, TBK1
IRF3-mediated induction of type I IFN1102.0×0.046TBK1
Regulation of innate immune responses to cytosolic DNA195.2×0.046TBK1
TRAF3-dependent IRF activation pathway195.2×0.046TBK1
Regulation of pyruvate metabolism171.4×0.054NEK1
Mitochondrial tRNA aminoacylation164.9×0.054GARS1
Interleukin-37 signaling164.9×0.054TBK1
Chaperone Mediated Autophagy162.1×0.054PARK7
Interleukin-12 family signaling159.5×0.054SOD1
Cytosolic tRNA aminoacylation154.9×0.054GARS1
TNF signaling152.9×0.054TBK1
Pyruvate metabolism151.0×0.054NEK1
Interleukin-12 signaling151.0×0.054SOD1
Cytokine Signaling in Immune system210.2×0.054SOD1, TBK1
TRAF6 mediated IRF7 activation147.6×0.056TBK1
EGR2 and SOX10-mediated initiation of Schwann cell myelination146.0×0.056MPZ
TNFR1-induced NF-kappa-B signaling pathway142.0×0.057OPTN

GO biological processes by enrichment

Over-representation of cohort genes vs the genome-wide background (hypergeometric test, Benjamini-Hochberg FDR; fold = observed/expected over 9 annotated cohort genes). Counts and members are kept as ground-truth; sorted by enrichment.

GO termCohort genesFoldFDRSample cohort genes
positive regulation of oxidative stress-induced intrinsic apoptotic signaling pathway2749.0×5e-04SOD1, PARK7
positive regulation of xenophagy2468.1×7e-04TBK1, OPTN
removal of superoxide radicals2234.1×0.002SOD1, PARK7
positive regulation of acute inflammatory response to antigenic stimulus11872.4×0.005PARK7
cellular response to glyoxal11872.4×0.005PARK7
glycolate biosynthetic process11872.4×0.005PARK7
detoxification of mercury ion11872.4×0.005PARK7
detoxification of hydrogen peroxide11872.4×0.005PARK7
obsolete methylglyoxal catabolic process to lactate11872.4×0.005PARK7
nuclear inner membrane organization11872.4×0.005TARDBP
guanine deglycation11872.4×0.005PARK7
obsolete guanine deglycation, methylglyoxal removal11872.4×0.005PARK7
guanine deglycation, glyoxal removal11872.4×0.005PARK7
cellular detoxification of methylglyoxal11872.4×0.005PARK7
regulation of supramolecular fiber organization11872.4×0.005PARK7
negative regulation of death-inducing signaling complex assembly11872.4×0.005PARK7
negative regulation of TRAIL-activated apoptotic signaling pathway11872.4×0.005PARK7
glyoxal metabolic process11872.4×0.005PARK7
obsolete positive regulation of L-dopa biosynthetic process11872.4×0.005PARK7
regulation of mitochondrial membrane potential2120.8×0.005SOD1, PARK7
negative regulation of gene expression323.0×0.005TARDBP, TBK1, PARK7
methylglyoxal metabolic process1936.2×0.007PARK7
mitochondrial glycyl-tRNA aminoacylation1936.2×0.007GARS1
detection of oxidative stress1936.2×0.007PARK7
response to antipsychotic drug1936.2×0.007SOD1
cell aggregation1936.2×0.007MPZ
negative regulation of protein K48-linked deubiquitination1936.2×0.007PARK7
positive regulation of dopamine biosynthetic process1936.2×0.007PARK7
negative regulation of nitrosative stress-induced intrinsic apoptotic signaling pathway1936.2×0.007PARK7
positive regulation of autophagy246.2×0.007TBK1, OPTN

Therapeutics

Drugs indicated for this disease

0 approved, 2 in late-stage (phase 3) trials. Disease-direct ChEMBL indications, not inferred from the associated-gene cohort below.

DrugDevelopment status
CannabidiolPhase 3 (in late-stage trials)
Human Immunoglobulin GPhase 3 (in late-stage trials)

Earlier-phase candidates (phase 2, investigational — efficacy not yet established): Tocilizumab.

Drug target analysis

Approved (phase 4): 3 · Phase ≥3: 4 · Phased (≥1): 5 · Undrugged: 4

Druggability breadth: 6 of 9 evidence-associated genes (67%) have a ChEMBL target (buckets above are over the deeply-mined display cohort).

Genes with an approved drug

The molecule shown is one approved compound that hits the gene — not necessarily a drug of choice or one indicated for this disease.

SymbolExample approved molecule
TARDBPMITOXANTRONE
TBK1MOMELOTINIB
NEK1FEDRATINIB

Top cohort targets by molecule count

SymbolMoleculesMax phase
TBK1384
NEK1124
TARDBP14
PARK712
GARS113
DSCAML100
SOD100
OPTN00
MPZ00

Drugs targeting cohort genes (top 30)

MoleculeMax phaseTargets in cohort
MITOXANTRONE4TARDBP
MOMELOTINIB4TBK1
AMLEXANOX4TBK1
FEDRATINIB4NEK1, TBK1
RUXOLITINIB4TBK1
ENTRECTINIB4TBK1
PACRITINIB4TBK1
BOSUTINIB4TBK1
FILGOTINIB4TBK1
NINTEDANIB4TBK1
SUNITINIB4TBK1
ERLOTINIB4TBK1
CRIZOTINIB4TBK1
MIDOSTAURIN4TBK1
DABRAFENIB4NEK1
ORANTINIB3TBK1
ALVOCIDIB3TBK1
DOVITINIB3TBK1
LESTAURTINIB3NEK1, TBK1
RUBOXISTAURIN3TBK1
CRENOLANIB3GARS1
SILMITASERTIB2TBK1
FORETINIB2TBK1
SU-0148132TBK1
CENISERTIB2TBK1
ADAVOSERTIB2TBK1
CERDULATINIB2TBK1
R-4062NEK1, TBK1
AT-92832TBK1
MILCICLIB2TBK1

Bioactivity and enzyme data

Enzyme cohort genes (≥1 EC): 3.

Cohort genes with ChEMBL bioactivity (full, sorted by assay count)

SymbolAssaysType breakdown
TBK1475Binding:473, Functional:2
NEK1288Binding:288
PARK762Binding:62
SOD138Binding:32, Functional:5, ADMET:1
TARDBP8Binding:7, Functional:1
GARS18Binding:8

Cohort enzymes (BRENDA EC)

SymbolEC numbersNames
SOD11.15.1.1superoxide dismutase
PARK73.5.1.124, 4.2.1.130protein deglycase, D-lactate dehydratase
GARS16.1.1.14glycine-tRNA ligase

Cohort genes with high screening signal

≥100 ChEMBL assays — a studied-ness signal; see Therapeutics for approved-drug status.

SymbolChEMBL assays
TBK1475
NEK1288

Pharmacogenomics

Cohort genes with a PharmGKB record: 9; with CPIC/DPWG dosing guidelines: 0.

No cohort gene has a CPIC/DPWG genotype-guided dosing guideline (PharmGKB).

Chemical tractability of cohort targets

30 approved/phased compounds have measured bioactivity against a cohort gene (and aren’t yet in disease-level trials). This is a research / tractability signal, NOT a therapeutic recommendation — a bioactivity row often reflects off-target or screening binding (e.g. promiscuous kinase inhibitors against a cohort kinase), implying no disease mechanism.

CompoundMax phaseCohort target (bioactivity)
MITOXANTRONE4TARDBP
MOMELOTINIB4TBK1
AMLEXANOX4TBK1
FEDRATINIB4NEK1, TBK1
RUXOLITINIB4TBK1
ENTRECTINIB4TBK1
PACRITINIB4TBK1
BOSUTINIB4TBK1
FILGOTINIB4TBK1
NINTEDANIB4TBK1
SUNITINIB4TBK1
ERLOTINIB4TBK1
CRIZOTINIB4TBK1
MIDOSTAURIN4TBK1
DABRAFENIB4NEK1
ORANTINIB3TBK1
ALVOCIDIB3TBK1
DOVITINIB3TBK1
LESTAURTINIB3NEK1, TBK1
RUBOXISTAURIN3TBK1
CRENOLANIB3GARS1
SILMITASERTIB2TBK1
FORETINIB2TBK1
SU-0148132TBK1
CENISERTIB2TBK1
ADAVOSERTIB2TBK1
CERDULATINIB2TBK1
R-4062NEK1, TBK1
AT-92832TBK1
MILCICLIB2TBK1

Druggability pyramid

Cohort genes binned by druggability tier (high → low):

TierDefinitionGenesSymbols
AApproved (phase 4 drug)3TARDBP, TBK1, NEK1
BPhased (≥1) drug, not yet approved2PARK7, GARS1
CDruggable family + PDB, no drug3DSCAML1, SOD1, MPZ
DDruggable family + AlphaFold only, no drug0
EDifficult family or no structure, no drug1OPTN

Undrugged target profiles

4 cohort genes are undrugged. Ranked by ‘starting-point quality’ (assay depth + drugged-partner adjacency).

SymbolChEMBL assaysDrugged partners (top 3)
SOD138TARDBP
OPTN0TBK1
DSCAML10
MPZ0

Clinical trials & evidence

Clinical trials

Clinical trials: 104.

Phase distribution (across all retrieved trials)

PhaseTrials
Not specified76
PHASE211
PHASE19
PHASE1/PHASE24
PHASE32
PHASE41
PHASE2/PHASE31

Top trials by phase / activity

NCTPhaseStatusTitle
NCT04997954PHASE4UNKNOWNEMERALD TRIAL Open Label Extension Study
NCT01776970PHASE2/PHASE3COMPLETEDSafety and Efficacy on Spasticity Symptoms of a Cannabis Sativa Extract in Motor Neuron Disease
NCT01951924PHASE3COMPLETEDLIME Study (LFB IVIg MMN Efficacy Study)
NCT03690791PHASE3UNKNOWNEfficacy of Cannabinoids in Amyotrophic Lateral Sclerosis or Motor Neurone Disease
NCT06315608PHASE2NOT_YET_RECRUITINGMRG-001 in Patients With Amyotrophic Lateral Sclerosis
NCT07396818PHASE1/PHASE2NOT_YET_RECRUITINGKamlanoflast In Amyotrophic Lateral Sclerosis
NCT00076687PHASE2COMPLETEDSafety Study of Botulinum Toxin Type A in Post-Upper Limb Stroke Patients With Reduced Lung Function
NCT00324454PHASE2COMPLETEDLevetiracetam for Cramps, Spasticity and Neuroprotection in Motor Neuron Disease
NCT00956488PHASE1/PHASE2COMPLETEDSupported Treadmill Ambulation Training (STAT) for Patients Diagnosed With Amyotrophic Lateral Aclerosis
NCT01369901PHASE1/PHASE2COMPLETEDEffect of Functional Exercise in Patients With Spinal Bulbar Muscular Atrophy
NCT02469896PHASE2COMPLETEDA Trial of Tocilizumab in ALS Subjects
NCT03067857PHASE1/PHASE2UNKNOWNAutologous Bone Marrow-Derived Stem Cell Therapy for Motor Neuron Disease
NCT03114215PHASE2COMPLETEDEffect of MD1003 in Amyotrophic Lateral Sclerosis
NCT03127514PHASE2COMPLETEDAMX0035 in Patients With Amyotrophic Lateral Sclerosis (ALS)
NCT03196375PHASE2TERMINATEDA Study to Assess FLX-787 in Subjects With Motor Neuron Disease Experiencing Muscle Cramps.
NCT03508453PHASE2WITHDRAWNIC14 for Treatment of Amyotrophic Lateral Sclerosis
NCT03705390PHASE2TERMINATEDA Safety and Tolerability Study of ILB® in Patients With Amyotrophic Lateral Sclerosis (ALS)
NCT04579666PHASE2TERMINATEDMERIDIAN: A Study to Evaluate the Efficacy and Safety of Pegcetacoplan in Adults With Amyotrophic Lateral Sclerosis (ALS)
NCT04788745PHASE2COMPLETEDTargeting Metabolic Flexibility in Amyotrophic Lateral Sclerosis (ALS)
NCT07093268PHASE1NOT_YET_RECRUITINGSafety of Intrathecal Riluzole in Patients With Amyotrophic Lateral Sclerosis
NCT07204977PHASE1ACTIVE_NOT_RECRUITINGAcamprosate in C9orf72 Hexanucleotide Repeat Expansion Amyotrophic Lateral Sclerosis (ACALS)
NCT01758510PHASE1COMPLETEDSafety Study of HLA-haplo Matched Allogenic Bone Marrow Derived Stem Cell Treatment in Amyotrophic Lateral Sclerosis
NCT02870634PHASE1COMPLETEDPhase 1 Dose Escalation and PK Study of Cu(II)ATSM in ALS/MND
NCT02987413PHASE1COMPLETEDEscalated Application of Mesenchymal Stem Cells in Amyotrophic Lateral Sclerosis Patients
NCT03487263PHASE1COMPLETEDDose-Escalation, Safety and Pharmacokinetic Study of IC14 in Motor Neurone Disease
NCT03929068PHASE1COMPLETEDSinemet for Spasticity and Function in Amyotrophic Lateral Sclerosis and Primary Lateral Sclerosis
NCT04894240PHASE1COMPLETEDA Study of Monepantel in Individuals With Motor Neurone Disease
NCT06177431PHASE1COMPLETEDAn Open Label Extension Study of Monepantel in Individuals With Motor Neurone Disease
NCT00004568Not specifiedRECRUITINGStudy of Inherited Neurological Disorders
NCT01900132Not specifiedRECRUITINGElectrical Impedance Myography: Natural History Studies inNeuromuscular Disorders and Healthy Volunteers
NCT02869048Not specifiedRECRUITINGAmyotrophic Lateral Sclerosis and the Innate Immune System
NCT03362658Not specifiedACTIVE_NOT_RECRUITINGNovel MRI Biomarkers for Monitoring Disease Progression in ALS
NCT03827187Not specifiedRECRUITINGAwareness Detection and Communication in Disorders of Consciousness
NCT04380649Not specifiedACTIVE_NOT_RECRUITINGDevelopment and Test of a Headset for BCI Until Obtaining an Efficient and Comfortable System That Can be Used in Daily Practice by ALS People
NCT04695210Not specifiedRECRUITINGVirtual Peer-to-peer Support Programme for Carers of MND
NCT04706234Not specifiedRECRUITINGSystematic Assessment of Laryngopharyngeal Function in Patients With Neurodegenerative Diseases
NCT04944940Not specifiedRECRUITINGClinical, Molecular and Imaging Biomarkers in Spinal and Bulbar Muscular Atrophy (SBMA)
NCT04961450Not specifiedENROLLING_BY_INVITATIONExplore Biomarkers of Motor Neuron Disease/Frontal Dementia Spectrum Disease in China
NCT05136222Not specifiedRECRUITINGPolysomnographic Titration of Non-invasive Ventilation in Motor Neurone Disease
NCT05137665Not specifiedRECRUITINGTarget ALS Biomarker Study; Longitudinal Biofluids, Clinical Measures, and At Home Measures

Drugs tested across these trials (top 30)

MoleculeMax phaseTrials referencing
ACAMPROSATE42
TRIMETAZIDINE42
PEGCETACOPLAN41
RILUZOLE41
SODIUM CHLORIDE41
IC1422
ATSM COPPER (II)21
MONEPANTEL12