Neuromyelitis optica

disease
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Also known as Devic diseaseDevic syndromeDevic's neuromyelitis opticaNeuromyelitis Optica Spectrum DisorderNMO

Summary

Neuromyelitis optica (MONDO:0019100) is a disease with 10 cohort genes (8 GWAS associations across 3 studies) and 117 clinical trials. The dominant Reactome pathway is Interferon gamma signaling (5 cohort genes). Top therapeutic interventions include inebilizumab, eculizumab, and ravulizumab.

At a glance

  • Prevalence: 1-9 / 100 000 (Worldwide) [Orphanet-validated]
  • Cohort genes: 10
  • GWAS associations: 8
  • Phenotypes (HPO): 17
  • Clinical trials: 117

Clinical features

Epidemiology

Prevalence records

31 prevalence record(s), Orphanet, top 20 (validated / broadest geography first):

TypeClassValueGeographyValidation
Annual incidence1-9 / 1 000 0000.1877WorldwideValidated
Point prevalence1-9 / 100 0002.071WorldwideValidated
Annual incidence1-9 / 1 000 0000.73MartiniqueValidated
Annual incidence<1 / 1 000 0000.054AustriaValidated
Annual incidence<1 / 1 000 0000.08United KingdomValidated
Annual incidence<1 / 1 000 0000.09NetherlandsValidated
Annual incidence<1 / 1 000 0000.063SpainValidated
Annual incidence<1 / 1 000 0000.07DenmarkValidated
Annual incidence<1 / 1 000 0000.079SwedenValidated
Annual incidence1-9 / 1 000 0000.132HungaryValidated
Annual incidence<1 / 1 000 0000.037AustraliaValidated
Annual incidence<1 / 1 000 0000.07United StatesValidated
Annual incidence1-9 / 1 000 0000.495IndiaValidated
Annual incidence1-9 / 1 000 0000.495CanadaValidated
Annual incidence1-9 / 1 000 0000.39MalaysiaValidated
Annual incidence<1 / 1 000 0000.053CubaValidated
Annual incidence1-9 / 1 000 0000.285Costa ricaValidated
Point prevalence1-9 / 1 000 0000.7AustriaValidated
Point prevalence1-9 / 100 0001.43United KingdomValidated
Point prevalence1-9 / 1 000 0000.89SpainValidated

Signs & symptoms

Clinical features (HPO)

17 HPO clinical features (Orphanet curated; top 17 by frequency):

HPO IDTermFrequency
HP:0000009Functional abnormality of the bladderVery frequent (80-99%)
HP:0000572Visual lossVery frequent (80-99%)
HP:0002529Neuronal loss in central nervous systemVery frequent (80-99%)
HP:0003474Somatic sensory dysfunctionVery frequent (80-99%)
HP:0010550ParaplegiaVery frequent (80-99%)
HP:0011096Peripheral demyelinationVery frequent (80-99%)
HP:0012486MyelitisVery frequent (80-99%)
HP:0030057Autoimmune antibody positivityVery frequent (80-99%)
HP:0100653Optic neuritisVery frequent (80-99%)
HP:0200026Ocular painVery frequent (80-99%)
HP:0012443Abnormality of brain morphologyFrequent (30-79%)
HP:0033342Anti-aquaporin 4 antibody positivityFrequent (30-79%)
HP:0002018NauseaOccasional (5-29%)
HP:0002878Respiratory failureOccasional (5-29%)
HP:0012229CSF pleocytosisOccasional (5-29%)
HP:0032492Anti-myelin oligodendrocyte glycoprotein antibody positivityOccasional (5-29%)
HP:0100247Recurrent singultusOccasional (5-29%)

Identifiers

Disease identifiers

FieldValue
Canonical nameneuromyelitis optica
Mondo IDMONDO:0019100
EFOEFO:0004256
MeSHD009471
Orphanet71211
DOIDDOID:8869
ICD-10-CMG36.0
ICD-11744293382
NCITC84934
SNOMED CT25044007
UMLSC0027873
MedGen45063
GARD0006267
MedDRA10029322
NORD1505
Is cancer (heuristic)no

Also known as: Devic disease · Devic syndrome · Devic’s neuromyelitis optica · Neuromyelitis Optica Spectrum Disorder · NMO

Data availability: 8 GWAS associations (3 studies) · 4 GenCC gene-disease records · 24 cell lines.

Disease family

An umbrella term covering 3 Mondo subtypes.

Classification path: disease › human disease › disease by body system or component › nervous system disorderneuromyelitis optica

Related subtypes (71): congenital nervous system disorder, central nervous system disorder, autoimmune disorder of the nervous system, cranial nerve neuropathy, peripheral nervous system disorder, neuronitis, diplegia of upper limb, retinal disorder, developmental disability, restless legs syndrome, movement disorder, toxic encephalopathy, Barre-Lieou syndrome, Gerstmann syndrome, drug-induced akathisia, drug-induced dyskinesia, stiff-person syndrome, Worster-Drought syndrome, corneal-cerebellar syndrome, pachygyria-intellectual disability-epilepsy syndrome, porencephaly-cerebellar hypoplasia-internal malformations syndrome, symmetrical thalamic calcifications, neonatal brainstem dysfunction, primary orthostatic hypotension, rippling muscle disease with myasthenia gravis, periodic paralysis, qualitative or quantitative protein defects in neuromuscular diseases, specific learning disability, cerebellar hypoplasia-tapetoretinal degeneration syndrome, locked-in syndrome, dopa-responsive dystonia, idiopathic recurrent stupor, chronic lymphocytic inflammation with pontine perivascular enhancement responsive to steroids, spontaneous periodic hypothermia, Sydenham chorea, duplication of the pituitary gland, Balint syndrome, paraneoplastic neurologic syndrome, persistent idiopathic facial pain, serotonin syndrome, hypothalamic adipsic hypernatraemia syndrome, exercise-induced malignant hyperthermia, perineural cyst, neuromuscular disease, AL amyloidosis, AA amyloidosis, neuroleptic malignant syndrome, infectious disorder of the nervous system, central nervous system malformation, synaptopathy, nervous system neoplasm, sensory ganglionopathy, radiculitis, wet beriberi, perceptual disorders, prepubertal anorexia nervosa, neurocutaneous syndrome, neurovascular disorder, Wallerian degeneration, nervous system injury, neurosarcoidosis, neuroendocrine disorder, tubulinopathy, atactic disorder, hereditary neurological disease, meningitis-retention syndrome, KIF1A related neurological disorder, neurological pain disorder, neurodevelopmental disorder, post 5-alpha-reductase inhibitors treatment syndrome, post-selective serotonin reuptake inhibitor sexual dysfunction

Subtypes (3): neuromyelitis optica spectrum disorder with anti-AQP4 antibodies, neuromyelitis optica spectrum disorder with anti-MOG antibodies, neuromyelitis optica spectrum disorder without anti-MOG and without anti-AQP4 antibodies

Genetics & variants

GWAS landscape

8 GWAS associations across 3 studies. Top hits map to 2 distinct genes (as reported by GWAS).

Top associations by p-value

rsIDp-valueGeneRisk alleleOdds ratio
HLA-DRB1*03:012e-12?2.71
rs283832246e-12HLA-DRB1 - HLA-DQA1A2.24
HLA-B*08:016e-12?2.72
rs11507577e-12TNXBA2.86
HLA-DQB1*02:011e-11?2.58
HLA-C*07:011e-10?2.38
HLA-DQA1*05:015e-10?2.2
rs92722198e-10HLA-DQA1A2.48

Top studies (by case count)

StudyLead authorYearCasesControlsTitle
GCST011432Romero-Hidalgo S20201641,208Native American ancestry significantly contributes to neuromyelitis optica susceptibility in the admixed Mexican population.
GCST005964Estrada K2018660A whole-genome sequence study identifies genetic risk factors for neuromyelitis optica.
GCST000508Kim HJ2009530Common CYP7A1 promoter polymorphism associated with risk of neuromyelitis optica.

Variant details and genetic-evidence tiers

Tier distribution (top 50 variants)

TierVariants
Tier 1: coding0
Tier 2: splice/UTR0
Tier 3: regulatory0
Tier 4: intronic/intergenic8

MAF distribution

BucketVariants
common (>=0.05)8
low_freq (0.01-0.05)0
rare (<0.01)0
unknown0

Functional consequences

ConsequenceCount
unknown5
intergenic_variant2
synonymous_variant1

Top variants

rsIDChrPosAllelesMAFConsequenceGenep-valueTier
HLA-DRB1*03:010.122e-12Tier 4: intronic/intergenic
rs28383224632615876A>G,T0.42intergenic_variantHLA-DRB1 - HLA-DQA16e-12Tier 4: intronic/intergenic
HLA-B*08:010.116e-12Tier 4: intronic/intergenic
rs1150757632061428G>A,C0.1synonymous_variantTNXB7e-12Tier 4: intronic/intergenic
HLA-DQB1*02:010.131e-11Tier 4: intronic/intergenic
HLA-C*07:010.151e-10Tier 4: intronic/intergenic
HLA-DQA1*05:010.235e-10Tier 4: intronic/intergenic
rs9272219632634492G>A,T0.42intergenic_variantHLA-DQA18e-10Tier 4: intronic/intergenic

Genes & proteins

Mendelian disease overlap and somatic drivers

GenCC: 7 · Orphanet: 32 · OMIM-shared: 0 · Dual-evidence (GWAS+Mendelian): 0

GenCC gene–disease validity (cohort genes)

the Disease column is the GenCC-asserted condition — a cohort gene’s strongest validity may be for a related predisposition syndrome.

GeneClassificationInheritanceDiseaseRecords
AQP4LimitedUnknownneuromyelitis optica4
C5orf47LimitedAutosomal dominantneuromyelitis optica
FAM194CLimitedAutosomal dominantneuromyelitis optica
ZNF606LimitedAutosomal dominantneuromyelitis optica

Orphanet rare-disease linkage (cohort genes)

GeneOrphanet IDRare disease
C4AOrphanet:117Behçet disease
C4AOrphanet:169147Immunodeficiency due to a classical component pathway complement deficiency
C4AOrphanet:300345Autosomal systemic lupus erythematosus
C4AOrphanet:536Systemic lupus erythematosus
HLA-BOrphanet:117Behçet disease
HLA-BOrphanet:275798Pulmonary arterial hypertension associated with connective tissue disease
HLA-BOrphanet:29207Reactive arthritis
HLA-BOrphanet:3287Takayasu arteritis
HLA-BOrphanet:36426Stevens-Johnson syndrome
HLA-BOrphanet:397Giant cell arteritis
HLA-COrphanet:585909B-lymphoblastic leukemia/lymphoma with t(9;22)(q34.1;q11.2)
HLA-DQA1Orphanet:391490Adult-onset myasthenia gravis
HLA-DQA1Orphanet:930Idiopathic achalasia
HLA-DQB1Orphanet:2073Narcolepsy type 1
HLA-DQB1Orphanet:477738Pediatric multiple sclerosis
HLA-DQB1Orphanet:703Bullous pemphigoid
HLA-DQB1Orphanet:83465Narcolepsy type 2
HLA-DQB1Orphanet:930Idiopathic achalasia
HLA-DRB1Orphanet:2073Narcolepsy type 1
HLA-DRB1Orphanet:220393Diffuse cutaneous systemic sclerosis
HLA-DRB1Orphanet:220402Limited cutaneous systemic sclerosis
HLA-DRB1Orphanet:220407Limited systemic sclerosis
HLA-DRB1Orphanet:3437Vogt-Koyanagi-Harada disease
HLA-DRB1Orphanet:397Giant cell arteritis
HLA-DRB1Orphanet:477738Pediatric multiple sclerosis
HLA-DRB1Orphanet:536Systemic lupus erythematosus
HLA-DRB1Orphanet:545Follicular lymphoma
HLA-DRB1Orphanet:703Bullous pemphigoid
HLA-DRB1Orphanet:747Autoimmune pulmonary alveolar proteinosis
HLA-DRB1Orphanet:797Sarcoidosis
HLA-DRB1Orphanet:83465Narcolepsy type 2
HLA-DRB1Orphanet:85414Systemic-onset juvenile idiopathic arthritis

Cohort genes → proteins

10 cohort genes, 10 distinct canonical proteins.

Evidence partition

SubsetGenes
gwas_only6
multi_evidence4

Cohort genes (full)

SymbolHGNCEnsemblUniProtNameEvidence
FAM194CHGNC:25320ENSG00000131379Q8ND61Uncharacterized protein C3orf20gencc
ZNF606HGNC:25879ENSG00000166704Q8WXB4Zinc finger protein 606gencc
C5orf47HGNC:27026ENSG00000185056Q569G3Uncharacterized protein C5orf47gencc
AQP4HGNC:637ENSG00000171885P55087Aquaporin-4gencc
C4AHGNC:1323ENSG00000244731P0C0L4Complement C4-Agwas
HLA-BHGNC:4932ENSG00000234745P01889HLA class I histocompatibility antigen, B alpha chaingwas
HLA-CHGNC:4933ENSG00000204525P10321HLA class I histocompatibility antigen, C alpha chaingwas
HLA-DQA1HGNC:4942ENSG00000196735P01909HLA class II histocompatibility antigen, DQ alpha 1 chaingwas
HLA-DQB1HGNC:4944ENSG00000179344P01920HLA class II histocompatibility antigen, DQ beta 1 chaingwas
HLA-DRB1HGNC:4948ENSG00000196126P01911HLA class II histocompatibility antigen, DRB1 beta chaingwas

Cohort function summary

Lead sentence per gene, UniProt-curated.

SymbolProtein nameFunction (lead sentence)
ZNF606Zinc finger protein 606May act as a transcriptional repressor.
AQP4Aquaporin-4Forms a water-specific channel.
C4AComplement C4-APrecursor of non-enzymatic components of the classical, lectin and GZMK complement pathways, which consist in a cascade of proteins that leads to phagocytosis and breakdown of pathogens and signaling that strengthens the adaptive immune sy…
HLA-BHLA class I histocompatibility antigen, B alpha chainAntigen-presenting major histocompatibility complex class I (MHCI) molecule.
HLA-CHLA class I histocompatibility antigen, C alpha chainAntigen-presenting major histocompatibility complex class I (MHCI) molecule with an important role in reproduction and antiviral immunity.
HLA-DQA1HLA class II histocompatibility antigen, DQ alpha 1 chainBinds peptides derived from antigens that access the endocytic route of antigen presenting cells (APC) and presents them on the cell surface for recognition by the CD4 T-cells.
HLA-DQB1HLA class II histocompatibility antigen, DQ beta 1 chainBinds peptides derived from antigens that access the endocytic route of antigen presenting cells (APC) and presents them on the cell surface for recognition by the CD4 T-cells.
HLA-DRB1HLA class II histocompatibility antigen, DRB1 beta chainA beta chain of antigen-presenting major histocompatibility complex class II (MHCII) molecule.

Protein-family classification

Druggable: 6 · Difficult: 1 · Unknown: 3 · Druggable fraction: 0.6

Family distribution

Cohort families vs a genome-wide background (hypergeometric, BH-FDR; fold = observed/expected). Counts kept; sorted by enrichment, so the catch-all Other/Unknown bucket no longer leads.

FamilyGenesFoldFDR
Antibody/Immunoglobulin514.6×4e-05
Complement126.8×0.073
Transcription factor10.8×0.967
Other/Unknown30.5×0.976

Per-gene assignment

SymbolFamilyDruggable?ECInterPro (top 3)
FAM194COther/UnknownnoFAM194_C
ZNF606Transcription factornoKRAB, Znf_C2H2_type, KRAB_dom_sf
C5orf47Other/UnknownnoDUF4680
AQP4Other/UnknownnoMIP, MIP_CS, Aquaporin-like
C4AComplementyesAnaphylatoxin/fibulin, Netrin_domain, Macroglobln_a2
HLA-BAntibody/ImmunoglobulinyesMHC_I_a_a1/a2, Ig/MHC_CS, Ig_C1-set
HLA-CAntibody/ImmunoglobulinyesMHC_I_a_a1/a2, Ig_C1-set, Ig-like_dom
HLA-DQA1Antibody/ImmunoglobulinyesMHC_II_a_N, Ig/MHC_CS, Ig_C1-set
HLA-DQB1Antibody/ImmunoglobulinyesMHC_II_b_N, Ig/MHC_CS, Ig_C1-set
HLA-DRB1Antibody/ImmunoglobulinyesMHC_II_b_N, Ig/MHC_CS, Ig_C1-set

Expression context

Cohort genes with no expression data: 0.

10 cohort genes are a single-cell marker in ≥1 SCXA experiment.

Breadth distribution (Bgee present_calls)

BucketGenes
narrow (1-5 tissues)0
moderate (6-20)0
broad (>20)10
unknown0

Top tissues across cohort

TissueCohort genes
spleen3
right lung3
blood2
granulocyte2
cardiac muscle of right atrium1
left ventricle myocardium1
male germ line stem cell (sensu Vertebrata) in testis1
bronchial epithelial cell1
right uterine tube1
secondary oocyte1
left testis1
primordial germ cell in gonad1
right testis1
lateral globus pallidus1
substantia nigra pars compacta1
substantia nigra pars reticulata1
liver1
right adrenal gland cortex1
right lobe of liver1
gall bladder1

Per-gene tissue summary (top 30)

SymbolBgee breadthFANTOM5 breadthSCXATop tissues
FAM194C48tissue_specificmarkermale germ line stem cell (sensu Vertebrata) in testis, cardiac muscle of right atrium, left ventricle myocardium
ZNF606241ubiquitousmarkersecondary oocyte, right uterine tube, bronchial epithelial cell
C5orf4756tissue_specificmarkerprimordial germ cell in gonad, right testis, left testis
AQP4218tissue_specificmarkerlateral globus pallidus, substantia nigra pars reticulata, substantia nigra pars compacta
C4A134markerright lobe of liver, liver, right adrenal gland cortex
HLA-B134ubiquitousmarkerblood, spleen, granulocyte
HLA-C134ubiquitousmarkerblood, right lung, spleen
HLA-DQA1244broadmarkergall bladder, rectum, monocyte
HLA-DQB1268broadmarkerright lung, spleen, upper lobe of left lung
HLA-DRB1131tissue_specificmarkervermiform appendix, granulocyte, right lung

Protein interactions among cohort

Intra-cohort edges: 6.

Hub genes (top 10 by interactor count)

SymbolInteractor count
HLA-DRB13,448
HLA-B3,209
HLA-C836
FAM194C684
ZNF606580
C4A222
HLA-DQA1196
C5orf47130
HLA-DQB1128
AQP427

Intra-cohort edges

ABSources
C5orf47FAM194Cstring_interaction
C5orf47ZNF606string_interaction
FAM194CZNF606string_interaction
HLA-BHLA-Cbiogrid_interaction, intact
HLA-CHLA-DQB1intact
HLA-DQA1HLA-DQB1biogrid_interaction, intact

Structural data

PDB: 7 · AlphaFold-only: 3 · No structure: 0

Cohort genes with PDB structures (top 30)

SymbolUniProtPDB entries
HLA-BP01889237
HLA-DRB1P01911108
HLA-DQA1P0190928
HLA-CP1032113
C4AP0C0L412
HLA-DQB1P0192010
AQP4P550874

AlphaFold-only cohort genes (top 30 by pLDDT)

SymbolUniProtpLDDT
C5orf47Q569G362.69
ZNF606Q8WXB459.56
FAM194CQ8ND6159.33

Function

Pathway analysis

Distinct Reactome pathways touched by cohort: 26. Enrichment computed across 10 evidence-associated genes (8 with Reactome annotation).

Pathways by enrichment

Over-representation of cohort genes vs the genome-wide background (hypergeometric test, Benjamini-Hochberg FDR; fold = observed/expected over 8 annotated cohort genes). Counts and members are kept as ground-truth; sorted by enrichment.

PathwayCohort genesFoldFDRSample cohort genes
Interferon gamma signaling578.4×4e-08HLA-B, HLA-C, HLA-DQA1, HLA-DQB1, HLA-DRB1
Endosomal/Vacuolar pathway2259.6×3e-04HLA-B, HLA-C
Translocation of ZAP-70 to Immunological synapse2158.6×5e-04HLA-DQA1, HLA-DRB1
Phosphorylation of CD3 and TCR zeta chains2135.9×5e-04HLA-DQA1, HLA-DRB1
Co-inhibition by PD-12129.8×5e-04HLA-DQA1, HLA-DRB1
DAP12 interactions2119.0×5e-04HLA-B, HLA-C
Antigen Presentation: Folding, assembly and peptide loading of class I MHC298.5×6e-04HLA-B, HLA-C
Generation of second messenger molecules286.5×7e-04HLA-DQA1, HLA-DRB1
Interferon alpha/beta signaling238.1×0.003HLA-B, HLA-C
ER-Phagosome pathway232.4×0.004HLA-B, HLA-C
Downstream TCR signaling232.1×0.004HLA-DQA1, HLA-DRB1
MHC class II antigen presentation222.3×0.006HLA-DQA1, HLA-DRB1
SARS-CoV-2 activates/modulates innate and adaptive immune responses222.3×0.006HLA-B, HLA-C
Immunoregulatory interactions between a Lymphoid and a non-Lymphoid cell221.8×0.006HLA-B, HLA-C
Activation of C3 and C51158.6×0.011C4A
Passive transport by Aquaporins1109.8×0.015AQP4
Initial triggering of complement175.1×0.020C4A
Aquaporin-mediated transport146.0×0.031AQP4
Dengue virus activates/modulates innate and adaptive immune responses142.0×0.032C4A
Vasopressin regulates renal water homeostasis via Aquaporins133.2×0.039AQP4
Regulation of Complement cascade129.1×0.042C4A
Neutrophil degranulation25.8×0.052HLA-B, HLA-C
Post-translational protein phosphorylation112.5×0.087C4A
Regulation of Insulin-like Growth Factor (IGF) transport and uptake by Insulin-like Growth Factor Binding Proteins (IGFBPs)110.8×0.096C4A
Transport of small molecules13.1×0.288AQP4
Generic Transcription Pathway11.9×0.422ZNF606

GO biological processes by enrichment

Over-representation of cohort genes vs the genome-wide background (hypergeometric test, Benjamini-Hochberg FDR; fold = observed/expected over 8 annotated cohort genes). Counts and members are kept as ground-truth; sorted by enrichment.

GO termCohort genesFoldFDRSample cohort genes
peptide antigen assembly with MHC class II protein complex3395.0×2e-06HLA-DQA1, HLA-DQB1, HLA-DRB1
antigen processing and presentation of exogenous peptide antigen via MHC class II3203.8×5e-06HLA-DQA1, HLA-DQB1, HLA-DRB1
positive regulation of T cell mediated cytotoxicity3191.5×5e-06HLA-B, HLA-C, HLA-DRB1
positive regulation of immune response3180.6×5e-06HLA-DQA1, HLA-DQB1, HLA-DRB1
immune response529.4×5e-06HLA-B, HLA-C, HLA-DQA1, HLA-DQB1, HLA-DRB1
positive regulation of T cell activation3166.3×5e-06HLA-DQA1, HLA-DQB1, HLA-DRB1
adaptive immune response442.1×1e-05HLA-B, HLA-C, HLA-DQA1, HLA-DQB1
detection of bacterium2351.1×8e-05HLA-B, HLA-DRB1
antigen processing and presentation of endogenous peptide antigen via MHC class Ib2324.1×8e-05HLA-B, HLA-C
antigen processing and presentation of endogenous peptide antigen via MHC class I via ER pathway, TAP-independent2324.1×8e-05HLA-B, HLA-C
humoral immune response270.2×0.002HLA-DQB1, HLA-DRB1
regulation of interleukin-4 production12106.5×0.002HLA-DRB1
antigen processing and presentation of endogenous peptide antigen via MHC class II11053.2×0.004HLA-DRB1
regulation of interleukin-10 production11053.2×0.004HLA-DRB1
T cell receptor signaling pathway238.0×0.004HLA-DQB1, HLA-DRB1
myeloid dendritic cell antigen processing and presentation1702.2×0.004HLA-DRB1
regulation of dendritic cell differentiation1702.2×0.004HLA-B
regulation of T cell anergy1526.6×0.005HLA-B
regulation of interleukin-12 production1526.6×0.005HLA-B
regulation of T-helper cell differentiation1526.6×0.005HLA-DRB1
positive regulation of CD4-positive, alpha-beta T cell activation1526.6×0.005HLA-DRB1
positive regulation of CD4-positive, CD25-positive, alpha-beta regulatory T cell differentiation1421.3×0.006HLA-DRB1
protection from natural killer cell mediated cytotoxicity1351.1×0.007HLA-B
positive regulation of T cell mediated immune response to tumor cell1300.9×0.007HLA-DRB1
intracellular water homeostasis1300.9×0.007AQP4
positive regulation of apoptotic cell clearance1300.9×0.007C4A
T-helper 1 type immune response1234.1×0.008HLA-DRB1
positive regulation of memory T cell differentiation1234.1×0.008HLA-DRB1
regulation of interleukin-6 production1210.7×0.008HLA-B
multicellular organismal-level water homeostasis1210.7×0.008AQP4

Therapeutics

Drugs indicated for this disease

2 approved, 5 in late-stage (phase 3) trials. Disease-direct ChEMBL indications, not inferred from the associated-gene cohort below.

DrugDevelopment status
InebilizumabApproved (phase 4)
SatralizumabApproved (phase 4)
AzathioprinePhase 3 (in late-stage trials)
DivozilimabPhase 3 (in late-stage trials)
EculizumabPhase 3 (in late-stage trials)
Mycophenolate MofetilPhase 3 (in late-stage trials)
RavulizumabPhase 3 (in late-stage trials)

Earlier-phase candidates (phase 2, investigational — efficacy not yet established): Bortezomib, Carmustine, Cytarabine, Daratumumab, Etoposide, Filgrastim, Human Immunoglobulin G, Melphalan, Methylprednisolone, Prednisone, Rituximab, Tocilizumab, Zanubrutinib.

Drug target analysis

Approved (phase 4): 0 · Phase ≥3: 0 · Phased (≥1): 0 · Undrugged: 10

Druggability breadth: 5 of 10 evidence-associated genes (50%) have a ChEMBL target (buckets above are over the deeply-mined display cohort).

Top cohort targets by molecule count

SymbolMoleculesMax phase
FAM194C00
ZNF60600
C5orf4700
AQP400
C4A00
HLA-B00
HLA-C00
HLA-DQA100
HLA-DQB100
HLA-DRB100

Bioactivity and enzyme data

Enzyme cohort genes (≥1 EC): 0.

Cohort genes with ChEMBL bioactivity (full, sorted by assay count)

SymbolAssaysType breakdown
HLA-DRB117Binding:17
AQP48Binding:8
HLA-DQA12Binding:2
HLA-B1Binding:1
HLA-C1Binding:1

Pharmacogenomics

Cohort genes with a PharmGKB record: 10; with CPIC/DPWG dosing guidelines: 1.

Cohort genes with a CPIC/DPWG dosing guideline

SymbolCPIC guidelines
HLA-B1

Chemical tractability of cohort targets

0 approved/phased compounds have measured bioactivity against a cohort gene (and aren’t yet in disease-level trials). This is a research / tractability signal, NOT a therapeutic recommendation — a bioactivity row often reflects off-target or screening binding (e.g. promiscuous kinase inhibitors against a cohort kinase), implying no disease mechanism.

Druggability pyramid

Cohort genes binned by druggability tier (high → low):

TierDefinitionGenesSymbols
AApproved (phase 4 drug)0
BPhased (≥1) drug, not yet approved0
CDruggable family + PDB, no drug6C4A, HLA-B, HLA-C, HLA-DQA1, HLA-DQB1, HLA-DRB1
DDruggable family + AlphaFold only, no drug0
EDifficult family or no structure, no drug4FAM194C, ZNF606, C5orf47, AQP4

Undrugged target profiles

10 cohort genes are undrugged. Ranked by ‘starting-point quality’ (assay depth + drugged-partner adjacency).

SymbolChEMBL assaysDrugged partners (top 3)
FAM194C0
ZNF6060
C5orf470
AQP48
C4A0
HLA-B1
HLA-C1
HLA-DQA12
HLA-DQB10
HLA-DRB117

Clinical trials & evidence

Clinical trials

Clinical trials: 117.

Phase distribution (across all retrieved trials)

PhaseTrials
Not specified52
PHASE314
PHASE213
PHASE113
PHASE47
PHASE2/PHASE37
PHASE1/PHASE27
EARLY_PHASE14

Top trials by phase / activity

NCTPhaseStatusTitle
NCT06180278PHASE4ACTIVE_NOT_RECRUITINGLong-term, Open-label, Safety Study of Inebilizumab in Neuromyelitis Optica Spectrum Disorder (NMOSD)
NCT00304291PHASE4COMPLETEDA Pilot Study of Mitoxantrone for the Treatment of Recurrent Neuromyelitis Optica (Devic’s Disease)
NCT02021825PHASE4UNKNOWNEfficacy and Safety of Mitoxantrone in Patients With Refractory Neuromyelitis Optica and Spectrum Disorders
NCT02809079PHASE4UNKNOWNMycophenolate Mofetil Treatment With Neuromyelitis Optica Spectrum Disorders in Chinese Patients
NCT04256252PHASE4COMPLETEDRituximab at Low dosE for neuromyelitiS optiCa spectrUm disordEr (RESCUE)
NCT05269667PHASE4TERMINATEDA Study In Neuromyelitis Optica Spectrum Disorder (NMOSD) With Satralizumab As An Intervention
NCT06212245PHASE4UNKNOWNA Clinical Research Study of Inebilizumab in Neuromyelitis Optica Spectrum Disorders
NCT05199688PHASE3RECRUITINGA Study To Evaluate Pharmacokinetics, Efficacy, Safety, Tolerability, And Pharmacodynamics Of Satralizumab In Pediatric Patients With Aquaporin-4 Antibody Positive Neuromyelitis Optica Spectrum Disorder (NMOSD)
NCT05314010PHASE3ACTIVE_NOT_RECRUITINGA Study of MIL62 in Patients With Neuromyelitis Optica Spectrum Disorder (NMOSD)
NCT05346354PHASE2/PHASE3RECRUITINGEfficacy and Safety Study of Ravulizumab IV in Pediatric Participants With NMOSD
NCT05403138PHASE2/PHASE3ACTIVE_NOT_RECRUITINGSafety and Efficacy of Daratumumab in Patients With Anti-Aquaporin 4 Antibody Positive Neuromyelitis Optica Spectrum Disorders
NCT05730699PHASE3ACTIVE_NOT_RECRUITINGEfficacy and Safety of Divozilimab in Patients With Neuromyelitis Optica Spectrum Disorders (AQUARELLE)
NCT06413654PHASE2/PHASE3RECRUITINGA Clinical Study of B001 Injection in the Treatment of Neuromyelitis Optica Spectrum Disorders(NMOSD)
NCT06724809PHASE3ACTIVE_NOT_RECRUITINGEfficacy, Safety, PK, PD, and ADA of Eculizumab in Chinese Adults With NMOSD
NCT07132398PHASE3NOT_YET_RECRUITINGSlow vs. Rapid Glucocorticoids Tapering With Inebilizumab in NMOSD
NCT07557420PHASE3NOT_YET_RECRUITINGEfficacy, Safety, Pharmacokinetics, Pharmacodynamics, and Immunogenicity Study of Ravulizumab in Chinese Adults With Neuromyelitis Optica Spectrum Disorder (NMOSD)
NCT01892345PHASE3TERMINATEDA Randomized Controlled Trial of Eculizumab in AQP4 Antibody-positive Participants With NMO (PREVENT Study)
NCT02003144PHASE3COMPLETEDAn Open Label Extension Trial of Eculizumab in Relapsing NMO Patients
NCT02028884PHASE3COMPLETEDEfficacy and Safety Study of Satralizumab (SA237) as Add-on Therapy to Treat Participants With Neuromyelitis Optica (NMO) and NMO Spectrum Disorder (NMOSD)
NCT02073279PHASE3COMPLETEDEfficacy and Safety Study of Satralizumab (SA237) as Monotherapy to Treat Participants With Neuromyelitis Optica (NMO) and Neuromyelitis Optica Spectrum Disorder (NMOSD)
NCT02398994PHASE3TERMINATEDA Multicentre randomiSed Controlled TRial of IntraVEnous Immunoglobulin Versus Standard Therapy for Transverse Myelitis
NCT03002038PHASE2/PHASE3COMPLETEDComparison of Clinical Effects of Azathioprine and Rituximab NMO-SD Patients
NCT03330418PHASE3TERMINATEDA Phase III Study of TACI-antibody Fusion Protein Injection (RC18) in Subjects With Neuromyelitis Optica Spectrum Disorders
NCT03350633PHASE2/PHASE3COMPLETEDTocilizumab vs Azathioprine in Neuromyelitis Optica Spectrum Disorders
NCT03829566PHASE2/PHASE3WITHDRAWNAutologous Transplant To End NMO Spectrum Disorder
NCT04155424PHASE2/PHASE3TERMINATEDA Study of the Safety and Activity of Eculizumab in Pediatric Participants With Relapsing Neuromyelitis Optica Spectrum Disorder
NCT04201262PHASE3COMPLETEDAn Efficacy and Safety Study of Ravulizumab in Adult Participants With NMOSD
NCT04660539PHASE3COMPLETEDA Study to Evaluate the Safety and Efficacy of Satralizumab in Participants With Neuromyelitis Optica Spectrum Disorder (NMOSD)
NCT00716066PHASE2ACTIVE_NOT_RECRUITINGAutologous Stem Cell Transplant for Neurologic Autoimmune Diseases
NCT05504694PHASE1/PHASE2RECRUITINGOfatumumab in AQP4-IgG Seropositive NMOSD
NCT05549258PHASE2RECRUITINGStudy of Inebilizumab in Pediatric Subjects With Neuromyelitis Optica Spectrum Disorder
NCT06497374PHASE2NOT_YET_RECRUITINGFcRn Antagonists (Efgartigimod) for Acute NMOSD Attack
NCT06557174PHASE1/PHASE2NOT_YET_RECRUITINGA Study to Evaluate IMC-002 in Neuromyelitis Optica Spectrum Disorder (NMOSD) Patients
NCT06561009PHASE1/PHASE2NOT_YET_RECRUITINGSafety and Efficacy of BAFFR CART for Relapsed/ Refractory Neuromyelitis Optica Spectrum Disorder
NCT06697535PHASE2RECRUITINGA Study to Evaluate the Efficacy and Safety of JYP0061 in Patients With Acute Neuromyelitis Spectrum Disease (NMOSD)
NCT00904826PHASE1/PHASE2COMPLETEDAn Open Label Study of the Effects of Eculizumab in Neuromyelitis Optica
NCT01339455PHASE1/PHASE2TERMINATEDAutologous Hematopoietic Stem Cell Transplant in Neuromyelitis Optica
NCT01845584PHASE2COMPLETEDPhase II Clinical Trial of NPB-01 in Patients With Anti-aquaporin 4 Antibody Positive Neuromyelitis Optica Spectrum Disorder Not Provided Adequate Effect of Therapy to Steroids Plus Therapy.
NCT02166346PHASE2COMPLETEDSafety and Efficacy of Sustained Release Dalfampridine in Transverse Myelitis (Re-Launch)
NCT02249676PHASE2COMPLETEDAutologous Mesenchymal Stem Cells for the Treatment of Neuromyelitis Optica Spectrum Disorders

Drugs tested across these trials (top 30)

MoleculeMax phaseTrials referencing
INEBILIZUMAB48
ECULIZUMAB45
RAVULIZUMAB45
SATRALIZUMAB45
AZATHIOPRINE43
MITOXANTRONE43
2-MERCAPTOETHANESULFONIC ACID42
CETIRIZINE41
DALFAMPRIDINE41
DARATUMUMAB41
EFGARTIGIMOD ALFA41
HUMAN IMMUNOGLOBULIN G41
MYCOPHENOLATE MOFETIL41
PREDNISONE41
RITUXIMAB41
TOCILIZUMAB41
UBLITUXIMAB41
ZANUBRUTINIB41
DIVOZILIMAB31
ORELABRUTINIB31
ELCUBRAGISTAT21
CHEMBL1572001
CHEMBL519312801