Sorsby fundus dystrophy

disease
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Also known as SFDSorsby's pseudoinflammatory macular dystrophy

Summary

Sorsby fundus dystrophy (MONDO:0007640) is a disease caused by TIMP3 (GenCC Definitive), with 2 cohort genes.

At a glance

  • Prevalence: Unknown (Worldwide)
  • Causal gene: TIMP3 (GenCC Definitive)
  • Cohort genes: 2
  • ClinVar variants: 113
  • Phenotypes (HPO): 17

Clinical features

Signs & symptoms

Clinical features (HPO)

17 HPO clinical features (Orphanet curated; top 17 by frequency):

HPO IDTermFrequency
HP:0000572Visual lossVery frequent (80-99%)
HP:0007754Macular dystrophyVery frequent (80-99%)
HP:0030500Yellow/white lesions of the maculaVery frequent (80-99%)
HP:0031528Subretinal depositsVery frequent (80-99%)
HP:0000610Abnormal choroid morphologyFrequent (30-79%)
HP:0000662NyctalopiaFrequent (30-79%)
HP:0001129Large central visual field defectFrequent (30-79%)
HP:0011506Choroidal neovascularizationFrequent (30-79%)
HP:0030491Choriocapillaris atrophyFrequent (30-79%)
HP:0030602Abnormal fundus autofluorescence imagingFrequent (30-79%)
HP:0030625Hyporeflective spaces on macular OCTFrequent (30-79%)
HP:0000533Chorioretinal atrophyOccasional (5-29%)
HP:0000580Pigmentary retinopathyOccasional (5-29%)
HP:0000618BlindnessOccasional (5-29%)
HP:0001105Retinal atrophyOccasional (5-29%)
HP:0001141Severely reduced visual acuityOccasional (5-29%)
HP:0007722Retinal pigment epithelial atrophyOccasional (5-29%)

Identifiers

Disease identifiers

FieldValue
Canonical nameSorsby fundus dystrophy
Mondo IDMONDO:0007640
MeSHC564992
OMIM136900
Orphanet59181
DOIDDOID:0090114
ICD-11796458172
SNOMED CT193410003
UMLSC1850938
MedGen338164
GARD0016480
Is cancer (heuristic)no

Also known as: SFD · Sorsby fundus dystrophy · Sorsby’s pseudoinflammatory macular dystrophy

Data availability: 113 ClinVar variants · 5 GenCC gene-disease records · 1 cell line.

Disease family

An umbrella term covering 1 Mondo subtype.

Classification path: disease › human disease › disease by body system or component › nervous system disorderretinal disorderretinal degenerationinherited retinal dystrophySorsby fundus dystrophy

Related subtypes (104): retinal dystrophies primarily involving Bruch’s membrane, vitreoretinal dystrophy, dystrophies primarily involving the retinal pigment epithelium, retinal dystrophy in systemic or cerebroretinal lipidoses, age-related macular degeneration, helicoid peripapillary chorioretinal degeneration, microcephaly with or without chorioretinopathy, lymphedema, or intellectual disability, pigmented paravenous retinochoroidal atrophy, retinoschisis, autosomal dominant, retinal vasculopathy with cerebral leukoencephalopathy and systemic manifestations, amaurosis-hypertrichosis syndrome, familial benign flecked retina, microcephaly and chorioretinopathy 1, ornithine aminotransferase deficiency, retinal degeneration-nanophthalmos-glaucoma syndrome, retinoschisis of fovea, Revesz syndrome, choroideremia, choroideremia-deafness-obesity syndrome, X-linked retinal dysplasia, X-linked retinoschisis, progressive bifocal chorioretinal atrophy, aceruloplasminemia, late-onset retinal degeneration, infantile cerebellar-retinal degeneration, progressive retinal dystrophy due to retinol transport defect, microcornea-myopic chorioretinal atrophy, retinal dystrophy with inner retinal dysfunction and ganglion cell anomalies, macular degeneration, early-onset, cone-rod dystrophy, ectopia lentis-chorioretinal dystrophy-myopia syndrome, foveal hypoplasia-presenile cataract syndrome, MRCS syndrome, X-linked intellectual disability-limb spasticity-retinal dystrophy-diabetes insipidus syndrome, Leber congenital amaurosis, oligocone trichromacy, Oguchi disease, retinitis pigmentosa, hereditary macular dystrophy, RPE65-related recessive retinopathy, RPGR-related retinopathy, AIPL1-related retinopathy, RP2-related retinopathy, RDH5-related retinopathy, RLBP1-related retinopathy, LCA5-related retinopathy, ATF6-related retinopathy, RAB28-related retinopathy, FLVCR1-related retinopathy with or without ataxia, RPE65-related dominant retinopathy, GUCY2D retinopathy, PDE6A-related retinopathy, ELOVL4-related maculopathy, MAK-related retinopathy, KIZ-related retinopathy, TOPORS-related retinopathy, PRPF8-related retinopathy, RD3-related retinopathy, BEST1-related dominant retinopathy, BEST1-related recessive retinopathy, IMPG2-related recessive retinopathy, IMPG2-related dominant retinopathy, CACNA1F-related retinopathy, CACNA2D4-related retinopathy, CDHR1-related retinopathy, GUCA1A-related retinopathy, RHO-related retinopathy, SNRNP200-related dominant retinopathy, RDH12-related recessive retinopathy, RDH12-related dominant retinopathy, NMNAT1-related retinopathy, CNGA3-related retinopathy, EYS-related retinopathy, GNAT2-related retinopathy, IDH3B-related retinopathy, MERTK-related retinopathy, PRPF31-related retinopathy, GPR179-related retinopathy, GRM6-related retinopathy, ADAM9-related retinopathy, RP1-related recessive retinopathy, RP1-related dominant retinopathy, CERKL-related retinopathy, TRPM1-related retinopathy, CNGB1-related retinopathy, PCARE-related retinopathy, CNGA1-related retinopathy, ABCA4-related retinopathy, NYX-related retinopathy, retinal dystrophy, X-linked, Gardner-Hardcastle type, PDE6C-related retinopathy, PDE6G-related retinopathy, LRIT3-related retinopathy, IMPG1-related dominant retinopathy, IMPG1-related recessive retinopathy, TTLL5-related retinopathy, HGSNAT-related retinopathy, IMPDH1-related retinopathy, PRPH2-related retinopathy, PROM1-related retinopathy, KCNV2-related retinopathy, CRX-related retinopathy, REEP6-related retinopathy, SPATA7-related retinopathy

Subtypes (1): fundus dystrophy, pseudoinflammatory, recessive form

Genetics & variants

GWAS landscape

No GWAS associations recorded — common-variant (GWAS) studies don’t cover this disease (typical for Mendelian / rare diseases). See the curated gene cohort and Mendelian overlap below.

Variant details and genetic-evidence tiers

ClinVar germline variants

113 retrieved; paginated sample, class counts are floors:

66 uncertain significance, 35 benign, 4 conflicting classifications of pathogenicity, 3 pathogenic, 3 likely benign, 1 likely pathogenic, 1 benign/likely benign

ClinVarVariant (HGVS)GeneClassificationReview
12677NM_000362.5(TIMP3):c.572A>G (p.Tyr191Cys)SYN3Pathogeniccriteria provided, single submitter
12676NM_000362.5(TIMP3):c.610A>T (p.Ser204Cys)TIMP3Pathogeniccriteria provided, multiple submitters, no conflicts
12678NM_000362.5(TIMP3):c.536C>G (p.Ser179Cys)TIMP3Pathogeniccriteria provided, single submitter
12679NM_000362.5(TIMP3):c.565G>T (p.Gly189Cys)SYN3Likely pathogeniccriteria provided, single submitter
1933247NM_000362.5(TIMP3):c.602dup (p.Asp202fs)SYN3Conflicting classifications of pathogenicitycriteria provided, conflicting classifications
341348NM_000362.5(TIMP3):c.587G>A (p.Arg196Gln)SYN3Conflicting classifications of pathogenicitycriteria provided, conflicting classifications
289421NM_000362.5(TIMP3):c.321C>T (p.Arg107=)TIMP3Conflicting classifications of pathogenicitycriteria provided, conflicting classifications
341347NM_000362.5(TIMP3):c.516C>T (p.Phe172=)TIMP3Conflicting classifications of pathogenicitycriteria provided, conflicting classifications
12680NM_000362.5(TIMP3):c.484G>T (p.Glu162Ter)SYN3Uncertain significancecriteria provided, single submitter
1687491NM_000362.5(TIMP3):c.454_455insGTA (p.Tyr152delinsCysAsn)SYN3Uncertain significancecriteria provided, single submitter
341326NM_000362.4(TIMP3):c.-1136G>CSYN3Uncertain significancecriteria provided, single submitter
341327NM_000362.4(TIMP3):c.-1082C>GSYN3Uncertain significancecriteria provided, single submitter
341331NM_000362.4(TIMP3):c.-684T>CSYN3Uncertain significancecriteria provided, single submitter
341334NM_000362.4(TIMP3):c.-433C>TSYN3Uncertain significancecriteria provided, single submitter
341335NM_000362.4(TIMP3):c.-407G>ASYN3Uncertain significancecriteria provided, single submitter
341336NM_000362.4(TIMP3):c.-390C>ASYN3Uncertain significancecriteria provided, single submitter
341337NM_000362.4(TIMP3):c.-330C>TSYN3Uncertain significancecriteria provided, single submitter
341339NM_000362.5(TIMP3):c.-270G>TSYN3Uncertain significancecriteria provided, single submitter
341341NM_000362.5(TIMP3):c.-105G>CSYN3Uncertain significancecriteria provided, single submitter
341342NM_000362.5(TIMP3):c.121+4A>GSYN3Uncertain significancecriteria provided, single submitter
341346NM_000362.5(TIMP3):c.439-12A>TSYN3Uncertain significancecriteria provided, single submitter
341349NM_000362.5(TIMP3):c.*87T>CSYN3Uncertain significancecriteria provided, single submitter
341350NM_000362.5(TIMP3):c.*105C>ASYN3Uncertain significancecriteria provided, single submitter
341352NM_000362.5(TIMP3):c.*506G>ASYN3Uncertain significancecriteria provided, single submitter
341353NM_000362.5(TIMP3):c.*529G>ASYN3Uncertain significancecriteria provided, single submitter
341355NM_000362.5(TIMP3):c.*541T>ASYN3Uncertain significancecriteria provided, single submitter
341357NM_000362.5(TIMP3):c.*795A>GSYN3Uncertain significancecriteria provided, single submitter
341359NM_000362.5(TIMP3):c.*990G>ASYN3Uncertain significancecriteria provided, single submitter
341360NM_000362.5(TIMP3):c.*1179T>CSYN3Uncertain significancecriteria provided, single submitter
341362NM_000362.5(TIMP3):c.*1297T>CSYN3Uncertain significancecriteria provided, single submitter

Genes & proteins

Mendelian disease overlap and somatic drivers

GenCC: 5 · Orphanet: 1 · OMIM-shared: 0 · Dual-evidence (GWAS+Mendelian): 0

GenCC gene–disease validity (cohort genes)

the Disease column is the GenCC-asserted condition — a cohort gene’s strongest validity may be for a related predisposition syndrome.

GeneClassificationInheritanceDiseaseRecords
TIMP3DefinitiveAutosomal dominantSorsby fundus dystrophy5

Orphanet rare-disease linkage (cohort genes)

GeneOrphanet IDRare disease
TIMP3Orphanet:59181Sorsby fundus dystrophy

Cohort genes → proteins

2 cohort genes, 2 distinct canonical proteins.

Evidence partition

SubsetGenes
multi_evidence2

Cohort genes (full)

SymbolHGNCEnsemblUniProtNameEvidence
TIMP3HGNC:11822ENSG00000100234P35625Metalloproteinase inhibitor 3gencc,clinvar
SYN3HGNC:11496ENSG00000185666O14994Synapsin-3clinvar

Cohort function summary

Lead sentence per gene, UniProt-curated.

SymbolProtein nameFunction (lead sentence)
TIMP3Metalloproteinase inhibitor 3Mediates a variety of processes including matrix regulation and turnover, inflammation, and angiogenesis, through reversible inhibition of zinc protease superfamily enzymes, primarily matrix metalloproteinases (MMPs).
SYN3Synapsin-3May be involved in the regulation of neurotransmitter release and synaptogenesis.

Protein-family classification

Druggable: 0 · Difficult: 0 · Unknown: 2 · Druggable fraction: 0.0

Family distribution

Cohort families vs a genome-wide background (hypergeometric, BH-FDR; fold = observed/expected). Counts kept; sorted by enrichment, so the catch-all Other/Unknown bucket no longer leads.

FamilyGenesFoldFDR
Other/Unknown21.8×0.312

Per-gene assignment

SymbolFamilyDruggable?ECInterPro (top 3)
TIMP3Other/UnknownnoNetrin_domain, TIMP, TIMP-like_OB-fold
SYN3Other/UnknownnoSynapsin, ATP_grasp_subdomain_1, PreATP-grasp_dom_sf

Expression context

Cohort genes with no expression data: 0.

2 cohort genes are a single-cell marker in ≥1 SCXA experiment.

Breadth distribution (Bgee present_calls)

BucketGenes
narrow (1-5 tissues)0
moderate (6-20)0
broad (>20)2
unknown0

Top tissues across cohort

TissueCohort genes
decidua1
pigmented layer of retina1
synovial joint1
cortical plate1
primary visual cortex1
primordial germ cell in gonad1

Per-gene tissue summary (top 30)

SymbolBgee breadthFANTOM5 breadthSCXATop tissues
TIMP3299ubiquitousmarkersynovial joint, decidua, pigmented layer of retina
SYN3176broadmarkerprimordial germ cell in gonad, cortical plate, primary visual cortex

Protein interactions among cohort

Intra-cohort edges: 0.

Hub genes (top 10 by interactor count)

SymbolInteractor count
TIMP32,921
SYN31,601

Structural data

PDB: 2 · AlphaFold-only: 0 · No structure: 0

Cohort genes with PDB structures (top 30)

SymbolUniProtPDB entries
TIMP3P356251
SYN3O149941

Function

Pathway analysis

Distinct Reactome pathways touched by cohort: 6. Enrichment computed across 2 evidence-associated genes (2 with Reactome annotation).

Pathways by enrichment

Over-representation of cohort genes vs the genome-wide background (hypergeometric test, Benjamini-Hochberg FDR; fold = observed/expected over 2 annotated cohort genes). Counts and members are kept as ground-truth; sorted by enrichment.

PathwayCohort genesFoldFDRSample cohort genes
Serotonin Neurotransmitter Release Cycle1317.2×0.009SYN3
Dopamine Neurotransmitter Release Cycle1248.3×0.009SYN3
Neurotransmitter release cycle1219.6×0.009SYN3
Platelet degranulation143.9×0.031TIMP3
Transmission across Chemical Synapses138.1×0.031SYN3
Neuronal System122.1×0.045SYN3

GO biological processes by enrichment

Over-representation of cohort genes vs the genome-wide background (hypergeometric test, Benjamini-Hochberg FDR; fold = observed/expected over 2 annotated cohort genes). Counts and members are kept as ground-truth; sorted by enrichment.

GO termCohort genesFoldFDRSample cohort genes
negative regulation of extracellular matrix disassembly11404.3×0.004TIMP3
negative regulation of membrane protein ectodomain proteolysis1936.2×0.004TIMP3
synaptic vesicle clustering1702.2×0.004SYN3
regulation of synaptic transmission, GABAergic1526.6×0.004SYN3
neurotransmitter secretion1351.1×0.005SYN3
response to hormone1216.1×0.007TIMP3
response to cytokine1187.2×0.007TIMP3
synapse organization1140.4×0.008SYN3
visual perception139.8×0.025TIMP3

Therapeutics

Drug target analysis

Approved (phase 4): 0 · Phase ≥3: 1 · Phased (≥1): 1 · Undrugged: 1

Druggability breadth: 1 of 2 evidence-associated genes (50%) have a ChEMBL target (buckets above are over the deeply-mined display cohort).

Top cohort targets by molecule count

SymbolMoleculesMax phase
TIMP313
SYN300

Drugs targeting cohort genes (top 30)

MoleculeMax phaseTargets in cohort
SURAMIN3TIMP3

Bioactivity and enzyme data

Enzyme cohort genes (≥1 EC): 0.

Cohort genes with ChEMBL bioactivity (full, sorted by assay count)

SymbolAssaysType breakdown
TIMP31Binding:1

Pharmacogenomics

Cohort genes with a PharmGKB record: 2; with CPIC/DPWG dosing guidelines: 0.

No cohort gene has a CPIC/DPWG genotype-guided dosing guideline (PharmGKB).

Chemical tractability of cohort targets

1 approved/phased compounds have measured bioactivity against a cohort gene (and aren’t yet in disease-level trials). This is a research / tractability signal, NOT a therapeutic recommendation — a bioactivity row often reflects off-target or screening binding (e.g. promiscuous kinase inhibitors against a cohort kinase), implying no disease mechanism.

CompoundMax phaseCohort target (bioactivity)
SURAMIN3TIMP3

Druggability pyramid

Cohort genes binned by druggability tier (high → low):

TierDefinitionGenesSymbols
AApproved (phase 4 drug)0
BPhased (≥1) drug, not yet approved1TIMP3
CDruggable family + PDB, no drug0
DDruggable family + AlphaFold only, no drug0
EDifficult family or no structure, no drug1SYN3

Undrugged target profiles

1 cohort genes are undrugged. Ranked by ‘starting-point quality’ (assay depth + drugged-partner adjacency).

SymbolChEMBL assaysDrugged partners (top 3)
SYN30

Clinical trials & evidence

Clinical trials

Clinical trials: 0.